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Factors Associated With Late HIV Diagnosis in Grampian: an Epidemiological Study

Completed
Conditions
Human Immunodeficiency Virus
Interventions
Other: No intervention
Registration Number
NCT02804724
Lead Sponsor
University of Aberdeen
Brief Summary

Human immunodeficiency virus (HIV) is a major global health concern which has resulted in an estimated 39 million deaths world-wide. Although it is now a treatable medical condition there is still avoidable morbidity and mortality associated with HIV infection in the UK. Late diagnosis (CD4 count of \<350 cells/mm3 or AIDS-defining illness irrespective of CD4 count) is associated with increased morbidity and mortality, increased risk of transmission, impaired response to antiretroviral therapy and increased healthcare costs. In Grampian, 49% of patients were diagnosed late between 1984 and 2011. Therefore, the aim of the study is to determine the factors associated with late HIV diagnosis in Grampian between 2009 and 2014 to ascertain whether diagnoses could have been made earlier.

The study constitutes a secondary data analysis. Individuals newly diagnosed with HIV between January 2009 and December 2014 were identified from a Health Protection Scotland (HPS) database. The majority of outcome data were extracted from the existing HPS database. Missing data were collected via a retrospective review of patient case-notes, laboratory reports and an electronic patient management system. Patients were classified as early or late diagnosis and comparisons were made between the groups using statistical tests. The study sought to provide a basis for recommendations for improvement of information and services to facilitate earlier HIV diagnosis in Grampian.

Detailed Description

Not available

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
124
Inclusion Criteria
  • Individuals diagnosed with HIV between January 2009 and December 2014
  • Individuals diagnosed in NHS Grampian
Exclusion Criteria
  • Individuals aged < 16 years of age

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Arm && Interventions
GroupInterventionDescription
Newly diagnosed individuals with HIVNo interventionIndividuals newly diagnosed with HIV in Grampian between January 2009 and December 2014
Primary Outcome Measures
NameTimeMethod
Age at diagnosis5 years

Age in years at diagnosis; compared between early and late diagnosis groups.

Gender5 years

Gender; compared between early and late diagnosis groups

Scottish Index of Multiple Deprivation (SIMD) Quintile5 years

SIMD quintile (1 representing most deprived to 5 representing least deprived); compared between early and late diagnosis groups

Ethnicity5 years

Ethnic group; compared between early and late diagnosis groups

Migrant status5 years

Migrant status in relation to the United Kingdom; compared between early and late diagnosis groups

Probable mode of transmission5 years

Probable mode of HIV transmission; compared between early and late diagnosis groups

Probable region of exposure5 years

Probable region of exposure to HIV; compared between early and late diagnosis groups

Registration with General Practitioner5 years

Current registration status with General Practitioner; compared between early and late diagnosis groups

Contact with healthcare professional5 years

Contact with healthcare professional(s) in the year preceding HIV diagnosis (contact versus no contact); compared between early and late diagnosis groups

Frequency of healthcare contacts5 years

Frequency of contact with healthcare professional(s) in the year preceding HIV diagnosis; compared between early and late diagnosis groups

Previous HIV testing5 years

Previous HIV testing (no testing versus testing); compared between early and late diagnosis groups

Clinical indicator disease5 years

Presence or absence of a BHIVA clinical indicator disease in the five years preceding diagnosis; compared between early and late diagnosis groups

Number of clinical indicator disease(s)5 years

Number of BHIVA clinical indicator disease(s) present in the five years preceding diagnosis; compared between early and late diagnosis groups

Co-existing hepatitis B/C infection5 years

Presence or absence of a co-existing hepatitis B/C infection; compared between early and late diagnosis groups

Secondary Outcome Measures
NameTimeMethod
Frequency of missed opportunities for diagnosis5 years

Number of missed opportunities for diagnosis as defined by the BHIVA testing guidelines; compared between early and late diagnosis groups

Circumstance of HIV diagnosis5 years

Circumstance of HIV diagnosis; no BHIVA clinical indicator disease present versus testing offered following detection of a BHIVA clinical indicator disease versus no testing offered following the detection of a BHIVA clinical indicator disease. Compared between early and late diagnosis groups

Trial Locations

Locations (1)

NHS Grampian

🇬🇧

Aberdeen, Aberdeen City, United Kingdom

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