Investigating the effect of an Admission Support Plan on improving the hospital admission experience of children and young people with developmental disabilities, communication difficulties and challenging behaviours.
- Conditions
- Developmental disabilityAutism Spectrum DisorderCerebral PalsyAttention Deficit Hyperactivity Disorder (ADHD)Down SyndromeMental Health - Autistic spectrum disordersMental Health - Learning disabilitiesHuman Genetics and Inherited Disorders - Down's syndromeHuman Genetics and Inherited Disorders - Other human genetics and inherited disordersPublic Health - Health service research
- Registration Number
- ACTRN12621000715875
- Lead Sponsor
- Auckland District Health Board
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- ot yet recruiting
- Sex
- All
- Target Recruitment
- 40
Part 1:
Participants will be parents/caregivers of children and young people with developmental disability including but not limited to, communication difficulties such as Autism Spectrum Disorder (ASD), cerebral palsy or language delay, behavioural challenges such as Attention Deficit Hyperactivity Disorder (ADHD) and intellectual disability or global developmental delay, including children with genetic conditions such as Down syndrome.
Patients will have been inpatients at Starship Children's Hospital during the preceding 6 months.
Parents/caregivers will have sufficient understanding of English in order to complete the survey
Part 2:
Participants will have sufficient understanding of English in order to participate in the co-design process.
Participants will be available for all sections of the co-design process.
Ideally participants will have experience of hospital admission either as the parent/caregiver of a child or young person or as part of their professional role.
Part 3:
Patients must have been admitted to a ward at Starship Children's Hospital and must have used the ASP during their admission within the 2 month intervention period.
Parent/caregiver contact details must have been entered onto the ASP in order to facilitate participation.
Parents/caregivers will have sufficient understanding of English in order to complete the survey.
Staff who have completed or used the ASP as part of their care of a patient with developmental disability.
None
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method