EMERGE: An Ehealth Model of Care for Paediatric Patients and Families at the End-of-Treatment for Acute Lymphoblastic Leukaemia

The Murdoch Children's Research Institute0 个研究点目标入组 100 人开始时间: 2023年7月12日最近更新: 2024年8月5日

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•Inclusion criteria for the patient participant group include:
•- Aged between 2 and 18 years at the time of enrolment.
•- Diagnosed with ALL or LLy.
•- Received oncology treatment at the RCH or MCH.
•- In the final 4 months of maintenance treatment or has completed treatment within the last 6 months.
•Inclusion criteria for the parent/caregiver group include:
•Parent/caregiver of a patient aged between 2 to 18 years who has been treated for ALL/LLy at either the RCH or MCH and is in the maintenance phase or has completed treatment.
•Inclusion criteria for clinical stakeholder group include:
•Medical, nursing, social work, allied health, mental health or paediatric integrated cancer service (PICS) staff who work with children treated for ALL/LLy and their families at either the RCH or MCH.

•Exclusion criteria for the patient group include:
•Diagnosed with another form of cancer
•Relapsed or refractory disease
•Receiving end-of-life treatment
•Exclusion criteria for the parent/caregiver group include:
•Parent/caregiver of a child with another form of cancer or who has relapsed or refractory disease and/or is receiving end-of-life treatment.
•Exclusion criteria for clinical stakeholder group include:
•Medical, nursing, social work, allied health, mental health or PICS staff who do not work directly with paediatric patients with leukaemia.

发起方

The Murdoch Children's Research Institute