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Specifying Interventions From the Sickle Cell Disease Implementation Consortium (SCDIC)

Completed
Conditions
Anemia, Sickle Cell
Registration Number
NCT03380351
Lead Sponsor
Washington University School of Medicine
Brief Summary

The goal of this study is to specify the interventions, implementation strategies and control conditions from the Sickle Cell Disease Implementation Consortium (SCDIC) using a mixed-methods approach to study site materials and conduct semi-structured qualitative interviews with site representatives (N=3 per site). We focused on the Emergency Department Working Group from the SCDIC working groups.

Detailed Description

The long-term goal of this line of research is to identify the most effective components of SCD interventions while also identifying effective implementation strategies informed by a systematic and rigorous work done by the members of the SCDIC consortium to improve the quality of life of people with SCD, a life-threatening hematological disorder. This study aims to collect detailed information about the planned interventions, the implementation strategies and the control conditions from each site.

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
17
Inclusion Criteria
  • three representatives of each of the SDIC sites: the Principal Investigator, and two people nominated by the PI.
Exclusion Criteria
  • none

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
SCDIC Framework of Interventions2 years

Detailed descriptions of the interventions being developed by the SCDIC including a) entity, or entities, targeted by the intervention; (b) functional domains targeted by the interventions; and (c) delivery system characteristics

Secondary Outcome Measures
NameTimeMethod

Trial Locations

Locations (1)

Washington University in St. Louis

🇺🇸

Saint Louis, Missouri, United States

Washington University in St. Louis
🇺🇸Saint Louis, Missouri, United States

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