Investigation of "Family-centered" Pediatric Rehabilitation Services Received by Children With Developmental Disabilities
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 130
- 试验地点
- 1
- 主要终点
- The Measure of Processes of Care-20
研究概览
简要总结
Developmental disability is a severe chronic disabled condition caused by mental or physical impairments. Children with developmental disabilities may face life-long difficulties in motor functioning, self-care, condition, communication, and independent living. They often receive rehabilitation services to promote daily functions and participation in home, school, and community lives.
"Family-centered" service has been considered as "best practice" in pediatric rehabilitation. Therapists encourage children with developmental disabilities and their parents to participate in decision making and implementing process of intervention, and provide intervention plan that best fit their family needs. Research shows that for children with developmental disabilities, family-centered services can enhance children's development, decrease parenting stress, promote emotional wellness, and increase parental satisfaction to services. Though the "family-centered" concept has been considered as relevant in pediatric rehabilitation, there are still difficulties, as well as a lack of evidence regarding its implementation in practice.
Reflecting the trend of family-centered medical care, the benefits of national health insurance in Taiwan for early intervention outpatient care will emphasize on family-centered intervention. The range of benefits may include communication with parents, parental education, consultation and instructions for home programs. Besides, outcomes of family-centered intervention will be treated as an important index for monitoring the quality of medical services.
Given that there is a lack of investigation regarding the family-centered pediatric rehabilitation, the purposes of this one-year research project are to investigate the implementation of family-centered pediatric rehabilitation for children with developmental disabilities and to identify related influencing factors. This study will provide empirical evidence for family-centered services in Taiwan.
研究设计
- 研究类型
- Observational
- 观察模型
- Family Based
- 时间视角
- Cross Sectional
入排标准
- 年龄范围
- 2 Years 至 12 Years（Child）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •children aged 2 to 12 years.
- •children with a primary diagnose or condition associated with developmental disabilities, including attention deficit hyperactivity disorder, autism, intellectual disability, Down syndrome, learning disorders, cerebral palsy, and other developmental delay.
- •parents agree to participate in this study.
排除标准
- •children with unstable physical conditions, such as cancer, having surgery within 3 months, infection, or other active medical conditions.
- •children with progressive disease (e.g. neuromuscular disease) or degenerative disorders (e.g. degenerative seizures).
结局指标
主要结局
The Measure of Processes of Care-20
时间窗: 1 year
次要结局
- Measure of Processes of Care- for Service Providers(1 year)
- Children and Adolescent Factor Inventory(1 year)
- Assessment of Preschool Children's Participation (APCP)(1 year)
- Children's Assessment of Participation and Enjoyment (CAPE)(1 year)
研究者
Lin-Ju Kang
Assistant Professor
Chang Gung University