Developing a Program for Transition to Adult Care for Youth With Chronic Conditions : a Mixed Method Study

Assistance Publique - Hôpitaux de Paris1 site in 1 country390 target enrollmentSeptember 2014

ConditionsTransition Care

Overview

Phase: Not Applicable
Intervention: Not specified
Conditions: Transition Care
Sponsor: Assistance Publique - Hôpitaux de Paris
Enrollment: 390
Locations: 1
Primary Endpoint: Agreement rate for each component of the transition program defined
Status: Completed
Last Updated: 3 years ago

Overview Investigators Eligibility Criteria Outcomes Sites Similar Trials

Overview

Brief Summary

Investigation in 3 steps the transition of young people with chronic diseases. FIRST STEP: qualitative survey. Interviews with carers, young people and parents. Chronic Diseases studied: epilepsy, HIV, sickle cell disease, obesity. SECOND STEP: Delphi consensus survey. Vote on internet : carers, patients' associations, young people and family. Chronic Diseases studied: all. THIRD STEP: validation survey. Vote on internet : young people. Chronic Diseases studied: all.

Registry

clinicaltrials.gov

Start Date

September 2014

End Date

October 2018

Last Updated

3 years ago

Study Type

Observational

Sex

All

Investigators

Sponsor

Assistance Publique - Hôpitaux de Paris

Responsible Party

Sponsor

Eligibility Criteria

Inclusion Criteria

•Youth with chronic diseases after transfer to adult care
•Parents or guardians of these youth.
•Professionals caregivers from pediatric services and adult services involved in transition