Transition From Pediatric to Adult Services: A Primary Care Based Model for Patients With Chronic Conditions
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- Chronic Health Condition
- Sponsor
- Children's Hospital of Philadelphia
- Enrollment
- 43
- Locations
- 1
- Primary Endpoint
- Successful transition to an adult provider
- Status
- Completed
- Last Updated
- 2 years ago
Overview
Brief Summary
This study is looking at ways to help young people with chronic health conditions take better care of their health and find an adult doctor.
Detailed Description
The purpose of this study is to determine whether providing targeted transition-related skills through interventions with varying degrees of intensity (from the low intensity Basic intervention group, to the mild intensity Group Intervention group, to the high intensity Full Intervention group) results in improved transition readiness and self-care skills and improved successful transition to adult-based services for young adults with chronic health conditions. Secondary objectives include determining if the transition interventions enhance transition-related satisfaction among participants, their caregivers and the involved pediatric and adult providers.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Males or females age 19 years of age or older
- •Presence of at least 1 Chronic Condition and/or Cognitive Disability
- •Last visit with pediatric primary care provider occurring on or after January 1, 2011
- •Currently active in one of four identified pediatric practices (Cobbs Creek, Chestnut Hill, Market Street, West Chester)
- •Current primary care provider approval for participation
- •English speaking
- •Young Adult
Exclusion Criteria
- •Male or female age \< 19 years
- •No presence of a chronic condition or cognitive disability
- •Last visit with pediatric PCP occurring prior to January 1, 2011
- •Not currently active in one of four identified pediatric practices (Cobbs Creek, Chestnut Hill, Market Street, West Chester)
- •Current PCP disapproves participation
- •Non-English speaking
- •Caregiver Inclusion Criteria:
- •Has a child enrolled in the study
- •Child has consented/assented to allow them to participate
- •English speaking
Outcomes
Primary Outcomes
Successful transition to an adult provider
Time Frame: 10 months
The primary outcome is successful transition to an adult provider, as evidenced by at least 1 visit with an adult provider within 10 months of the baseline visit.
Secondary Outcomes
- Increased self-care and transition related skills(6 months)