An App-based Transition Toolkit Targeting Youth With Chronic Health Conditions: A Randomized Trial as a Foundation to Improve Healthcare Transition and Outcomes
Overview
- Phase
- Not Applicable
- Intervention
- Not specified
- Conditions
- Chronic Health Condition
- Sponsor
- McMaster University
- Enrollment
- 39
- Locations
- 1
- Primary Endpoint
- Completion of Data Collection
- Status
- Completed
- Last Updated
- 6 years ago
Overview
Brief Summary
Moving from child care to adult care is a hard time for patients and their families. Parents of children with chronic conditions say they need more support around the time of changing care. Care providers say they do not have the tools to provide smooth transitions or help their patients manage their own health. This study is to see if a smart-phone-based app (named MyTransition) can improve healthcare transition experiences and health outcomes for youth, compared to usual care.
Detailed Description
Transition to adult care is an unavoidable and challenging period for patients and their families, and comes with adverse outcomes in experience of care, population health, and costs. Parents of children with chronic conditions report a greater need for support around the time of healthcare transition. Providers report neither having the tools nor appropriate resources to foster smooth transitions for patients and their families. We hypothesize that an app-based transition toolkit (named MyTransition) designed to support youth moving from child to adult care can improve their experiences and lead to better health. The main objective of this study is to collect information to design a large multi-centre randomized control trial to assess implementation of the MyTransition app including recruitment, completion of follow-up, and scale-ability of the intervention. The secondary objective is to assess the feasibility and potential effect of the MyTransition app-based transition toolkit for improving health of youth (quality of life), healthcare transition experience, and achievement of health and life goals.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Attending participating clinic at McMaster Children's Hospital
- •Diagnosed with chronic health condition
- •Must be able to utilize the intervention tool
- •Must be able to read and understand English
Exclusion Criteria
- •Dependence on caregivers in areas of daily functioning, self-care and/or communication
- •Inability to lead or provide own care
- •Enrolled in a potentially confounding trial
Outcomes
Primary Outcomes
Completion of Data Collection
Time Frame: 6-Month Follow-Up
Completion rate of 90% for all outcomes.
Secondary Outcomes
- Change in Short Form Six-Dimension (SF-6D)(Baseline, 3-month follow-up, 6-month follow-up)