The wellbeing of parents of children with and without developmental disabilities in Aotearoa New Zealand

Not Applicable

Recruiting

• Conditions: Mental health; Well-being; Mental Health - Anxiety; Mental Health - Studies of normal psychology, cognitive function and behaviour; Mental Health - Depression

• Registration Number: ACTRN12621001114831
• Lead Sponsor: A/Prof. Laurie McLay

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2021-08-23
• Last Update Posted: 30 August 2021

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 75

Inclusion Criteria

(1) caregiver of a child 18 years of age or under
(2) access to iOS/Android phone with wifi or data connection
(3) reside in New Zealand
(4) primary language spoken in the home is English.

Additional inclusion criteria will apply to sub-groups:
(1) We aim for 25/75 participants to be caregivers of a child with a formal diagnosis of autism spectrum disorder, provided by an appropriate healthcare professional (e.g., developmental paediatrician)
(2) 25/75 participants will be caregivers of a child with a Rare Genetic Neurodevelopmental Disorder (RGND), determined by a medical professional (e.g., developmental paediatrician). For the purpose of this study, RGND are defined as a group of syndromes
characterized by an abnormal structure and number of chromosomes [Davis et al., 2018]. A disorder is considered ‘rare’ if it affects <1/2,000 of the general population [European Commission, 2018].
(3) 25/75 participants will be caregivers of a child without a known developmental disorder.

Exclusion Criteria

None

Study & Design

• Study Type: Observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Mean score on Depression, Anxiety and Stress Scale[Once during week 1, 3, 5, and 7 post-enrolment, using the bi-weekly parenting and mood survey. <br>];Mean scores on Parenting Sense of Competency Scale[Once during week 1, 3, 5, and 7 post-enrolment, using the bi-weekly parenting and mood survey. ];Mean scores on Duke Social Support and Stress Scale[Once during week 1, 3, 5, and 7 post-enrolment, using the bi-weekly parenting and mood survey. ]