Parents Post-traumatic Stress Before and After Their Infant's Second Palliative Heart Surgery: The PaTHS Descriptive Correlational Longitudinal Study
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- Single-ventricle
- Sponsor
- Children's Mercy Hospital Kansas City
- Enrollment
- 22
- Locations
- 1
- Primary Endpoint
- Measure the level of parental post-traumatic stress two to four weeks before their infant's second palliative heart surgery
- Status
- Completed
- Last Updated
- 3 years ago
Overview
Brief Summary
The primary objective of this study is to measure parent's post-traumatic stress before and after their infant's second palliative heart surgery for single ventricle congenital heart disease. The investigators will use the posttraumatic stress disorder checklist for the DSM-V (PCL-5) to measure levels 2-4 weeks before and after the infant's second heart surgery. The investigators aim to describe the levels at the two-time points, compare the scores, and identify demographic information that correlates with the scores.
Investigators
Melissa Elliott
Advanced Practice Registered Nurse
Children's Mercy Hospital Kansas City
Eligibility Criteria
Inclusion Criteria
- •Parent who is 18 years or older of an infant with SVCHD
- •Following with CHAMP through Children's Mercy Hospital. Any person personally identifying as a parent of the child, who lives in the same household as the infant, and who will provide primary care after discharge from the hospital is eligible to participate.
Exclusion Criteria
- •Parents of an SVCHD infant who is undergoing end-of-life care, determined by the primary care team.
Outcomes
Primary Outcomes
Measure the level of parental post-traumatic stress two to four weeks before their infant's second palliative heart surgery
Time Frame: on average at 4-6 months of age
Measure level using the posttraumatic stress disorder checklist for the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition. The scores range 0-80 with scores greater than or equal to 31 suggest provisional Posttraumatic stress disorder diagnosis.
Secondary Outcomes
- Measure the level of parental post-traumatic stress two to four weeks after discharge following their infant's second palliative heart surgery.(On average 5-6 months of age)