The Life Experience of Young Women (Age 18-38) Who Live With Congenital Heart Disease
试验速览
- 阶段
- 不适用
- 入组人数
- 15
- 试验地点
- 1
- 主要终点
- Interview about the life experience of young women (age 18-38) who live with congenital heart disease and overwent an open heart operation.
研究概览
简要总结
This research will focus on young women between the ages of 18-38 who underwent a heart operation and their life experiences. This research will focus on these life events and the paradigm of these women being raised as "heart sick," and consequently lacking self-esteem (Frigiola, Bull, & Wray, 2014; Hickey et al., 2012). Most qualitative studies focusing on the quality of life compare men and women, completely ignoring women's body image and the experience of womanhood (Hickey et al., 2012; Hövels-Gürich et al., 2007; Sarikouch, et al., 2013). This study aims to focus on women's stories about their life experiences and the influence of surgery(ies) on their daily life using an the qualitative phenomenological approach.
研究设计
- 研究类型
- Observational
- 观察模型
- Cohort
- 时间视角
- Retrospective
入排标准
- 年龄范围
- 18 Years 至 38 Years（Adult）
- 性别
- Female
- 接受健康志愿者
- 否
入选标准
- •Atrial septal defect or ASD,
- •Ventricle septal defect or VSD,
- •Tetralogy of Fallot or TOF
- •Translocation of great arteries or TGA
- •underwent heart operation
- •Hebrew speakers that are able to understand the meanings of the questions and tell their life stories.
排除标准
- •Non Hebrew speakers
- •Did not underwent heart surgery.
结局指标
主要结局
Interview about the life experience of young women (age 18-38) who live with congenital heart disease and overwent an open heart operation.
时间窗: 1day, at the time of the interview
次要结局
未报告次要终点