Understanding the Psychosocial Needs of Parents Who Have Lost a Child to Cancer
Overview
- Phase
- Not Applicable
- Intervention
- Questionnaires/Interviews
- Conditions
- Parents Who Have Lost a Child to Cancer
- Sponsor
- Memorial Sloan Kettering Cancer Center
- Enrollment
- 160
- Locations
- 3
- Primary Endpoint
- Identify the unique qualitative themes related to finding meaning among parents who lost a child to cancer to inform development of a conceptually sound meaning-centered grief intervention.
- Status
- Active, not recruiting
- Last Updated
- 11 days ago
Overview
Brief Summary
The purpose of this study is to understand the experiences and needs of parents who have lost a child to cancer. This will aid us in developing an intervention that may help parents cope with their loss.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Loss of a child to cancer between 6 months and 6 years ago
- •Loss of a child between the ages of 6 months and 25 years
- •Biological or adoptive parent or stepparent
- •Parent must be age 18 or over
- •In the judgment of investigators/consenting professionals able to comprehend English to complete study assessments
- •To be eligible for the qualitative interview, participants more score of 19 or less (\< 19)or 34 or greater (\> 34) on the PG-13 to qualify
Exclusion Criteria
- •Significant psychiatric disturbance sufficient, in the investigator's judgment, to preclude completion of the assessment measures, interview or informed consent.
Arms & Interventions
Parents Who Have Lost a Child to Cancer
The overall goal of the proposed cross-sectional study is to obtain information necessary to the development of an effective Meaning-Centered Grief Intervention for parents who lost a child to cancer. In order to identify a subset of parents with whom we will conduct qualitative interviews with a subset of participants to address Aims 1 and 2, we will first screen participants to determine their levels of Prolonged Grief Disorder symptoms using a quantitative assessment (PG-13). The screening measure (PG-13) and the additional questionnaires included in the quantitative battery of measures will be analyzed to achieve Aim 3.
Intervention: Questionnaires/Interviews
Outcomes
Primary Outcomes
Identify the unique qualitative themes related to finding meaning among parents who lost a child to cancer to inform development of a conceptually sound meaning-centered grief intervention.
Time Frame: 2 years
Secondary Outcomes
- Determine differences in qualitative themes of meaning in parents in the high and low Prolonged Grief Disorder subgroups to help select a target population for a meaning-centered grief intervention.(2 years)
- Explore and identify factors associated with bereaved parents' psychosocial service underutilization to guide the development of an acceptable and feasible meaning-centered grief intervention format.(2 years)