Perceptions/experiences of end of life care for those living with/supporting those living with respiratory disease

Not Applicable

Completed

• Conditions: on-malignant progressive respiratory disease; Respiratory

• Registration Number: ISRCTN42163968
• Lead Sponsor: niversity of Hertfordshire

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Completion: 2015-10-19
• Study Start: 2022-06-14
• Last Update Posted: 27 June 2022

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 31

Inclusion Criteria

1. Individuals living with a non-malignant progressive respiratory condition
2. Individuals supporting/supported someone living with/lived with a non-malignant progressive respiratory condition
3. Nurses working in primary care (practice) with patients with a non-malignant progressive respiratory condition

Exclusion Criteria

Those unable to give understand the study and provide informed consent due to issues with capacity

Study & Design

• Study Type: Observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
The participants' experiences of the management of long term, progressive, non-malignant respiratory disease, measured using a qualitative interview with each participant at least 5 years post the commencement of their involvement with this condition. The data from these interviews are analysed using thematic analysis including interrogation of the data, coding and development of themes

Secondary Outcome Measures

Name	Time	Method
There are no secondary outcome measures