Improving utilisation of pulmonary rehabilitatio
- Conditions
- Chronic obstructive pulmonary disease (COPD)RespiratoryChronic lower respiratory diseases
- Registration Number
- ISRCTN20669629
- Brief Summary
2018 protocol for Work Package 1 in https://dx.doi.org/10.1136/bmjopen-2017-020750 (added 16/12/2019) 2019 protocol for Work Package 2 in https://www.ncbi.nlm.nih.gov/pubmed/30670521
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Suspended
- Sex
- All
- Target Recruitment
- 631
Work Package 1:
1. People resident in the East of England, aged 18 or over, with a diagnosis of COPD, stable disease, eligible for PR as defined by the guideline recommendations and able to read/write English
2. Within Cambridgeshire and Peterborough – healthcare professionals who refer to PR programmes, physiotherapists who provide PR, PR service managers and the CCG strategy manager
Work Package 2:
1. Patients resident in the East of England, age 18 or over, diagnosis of COPD, stable disease and eligible for PR as defined by guideline recommendations and able to read/write English. Patients of South Asian heritage will be eligible even if they do not have the ability to read or write in English but can communicate, read and write in Hindi or Urdu. Regarding patients who have accepted a PR offer, only those for whom this is the first offer they have accepted will be eligible
2. HCPs who refer to PR programmes in the CRN Eastern area and PR providers in the East of England PR Network
3. Commissioners (respiratory clinical leads) from selected CCGs
Does not meet the inclusion criteria
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method <br> Work Package 1<br> 1. Patients’ experiences of accessing pulmonary rehabilitation are measured using interviews and focus groups.<br> 2. Care pathway elements that create barriers (mapping primary care pathways) are assessed using patient and HCP interviews and focus groups<br><br> Work Package 2<br> 1. HCP and patients’ perspectives on barriers to PR referral and update are assessed using online surveys and qualitative research (focus group or interviews), user groups, feedback sessions<br> 2. Components for a toolkit to increase for PR referral and update are suggested using online surveys and qualitative research (focus group or interviews), user groups, feedback sessions<br> 3. Acceptability and usability of a toolkit for HCPs and patients are assessed using online surveys and qualitative research (focus group or interviews), user groups, feedback sessions<br>
- Secondary Outcome Measures
Name Time Method There are no secondary outcome measures