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Improving utilisation of pulmonary rehabilitatio

Not Applicable
Suspended
Conditions
Chronic obstructive pulmonary disease (COPD)
Respiratory
Chronic lower respiratory diseases
Registration Number
ISRCTN20669629
Lead Sponsor
Cambridge University Hospitals NHS Foundation Trust
Brief Summary

2018 protocol for Work Package 1 in https://dx.doi.org/10.1136/bmjopen-2017-020750 (added 16/12/2019) 2019 protocol for Work Package 2 in https://www.ncbi.nlm.nih.gov/pubmed/30670521

Detailed Description

Not available

Recruitment & Eligibility

Status
Suspended
Sex
All
Target Recruitment
631
Inclusion Criteria

Work Package 1:
1. People resident in the East of England, aged 18 or over, with a diagnosis of COPD, stable disease, eligible for PR as defined by the guideline recommendations and able to read/write English
2. Within Cambridgeshire and Peterborough – healthcare professionals who refer to PR programmes, physiotherapists who provide PR, PR service managers and the CCG strategy manager

Work Package 2:
1. Patients resident in the East of England, age 18 or over, diagnosis of COPD, stable disease and eligible for PR as defined by guideline recommendations and able to read/write English. Patients of South Asian heritage will be eligible even if they do not have the ability to read or write in English but can communicate, read and write in Hindi or Urdu. Regarding patients who have accepted a PR offer, only those for whom this is the first offer they have accepted will be eligible
2. HCPs who refer to PR programmes in the CRN Eastern area and PR providers in the East of England PR Network
3. Commissioners (respiratory clinical leads) from selected CCGs

Exclusion Criteria

Does not meet the inclusion criteria

Study & Design

Study Type
Interventional
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
<br> Work Package 1<br> 1. Patients’ experiences of accessing pulmonary rehabilitation are measured using interviews and focus groups.<br> 2. Care pathway elements that create barriers (mapping primary care pathways) are assessed using patient and HCP interviews and focus groups<br><br> Work Package 2<br> 1. HCP and patients’ perspectives on barriers to PR referral and update are assessed using online surveys and qualitative research (focus group or interviews), user groups, feedback sessions<br> 2. Components for a toolkit to increase for PR referral and update are suggested using online surveys and qualitative research (focus group or interviews), user groups, feedback sessions<br> 3. Acceptability and usability of a toolkit for HCPs and patients are assessed using online surveys and qualitative research (focus group or interviews), user groups, feedback sessions<br>
Secondary Outcome Measures
NameTimeMethod
There are no secondary outcome measures
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