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Engaging young service users with neurodevelopmental conditions in shaping their daily living support – a preliminary evaluation of a new tool

Not Applicable
Conditions
Service user engagement among young adults with autism spectrum condition or attention deficit hyperactivity disorder.
Mental and Behavioural Disorders
Registration Number
ISRCTN40551389
Lead Sponsor
Karolinska Institutet
Brief Summary

Not available

Detailed Description

Not available

Recruitment & Eligibility

Status
Ongoing
Sex
All
Target Recruitment
15
Inclusion Criteria

1. Aged 18 to 29 years old
2. Autism spectrum condition or attention deficit hyperactivity disorder
3. Currently accessing housing support
4. Sufficient proficiency in Swedish

Exclusion Criteria

Not meeting the participant inclusion criteria

Study & Design

Study Type
Interventional
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
Feasibility/acceptability:<br>1. Recruitment rate, uptake, and retention will be measured using information collected continuously over the course of the study<br>2. Characteristics of the included and retained samples (e.g., diagnoses, age, gender, housing/residence) and current needs, and preferences related to daily living support will be measured using information collected at pre-intervention<br>3. Usefulness and relevance of the tool will be measured using an evaluation form post-intervention<br>4. Participation/involvement will be measured using the Patient Participation and Rehabilitation Questionnaire pre-and post-intervention<br>5. Overall feasibility/acceptability will be measured using in-depth interviews with participating service users and their support workers post-intervention
Secondary Outcome Measures
NameTimeMethod
Preliminary effects:<br>1. Quality of life measured using the Assessment of Quality of Life (AQoL-8D) tool pre- and post-intervention<br>2. Self-efficacy measured using the Generalized Self-Efficacy Scale (GSE) pre- and post-intervention
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