Improving Patient and Caregiver Engagement Through the Application of Data Science Methods to Audio Recorded Clinic Visits Stored in Personal Health Libraries
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- Multimorbidity
- Sponsor
- Dartmouth-Hitchcock Medical Center
- Enrollment
- 45
- Locations
- 1
- Primary Endpoint
- Participant retention (Feasibility)
- Status
- Completed
- Last Updated
- 4 years ago
Overview
Brief Summary
In this project, the investigators will conduct a three-arm patient-randomized pilot trial in older adults with multimorbidity in ambulatory care settings to determine the feasibility, usability, and acceptability of an audio-based PHL developed with older adults and caregivers, HealthPAL.
Detailed Description
Providing digital recordings of clinical visits to patients has emerged as a new strategy to promote patient and family engagement in care. With advances in natural language processing, an opportunity exists to maximize the value of visit recordings for patients by automatically annotate key visit information (e.g., medications, tests \& imaging) with linkages to trustworthy online resources. These resources can be curated in an audio-based personal health library (PHL). In this project, the investigators will conduct a three-arm patient-randomized pilot trial in older adults with multimorbidity in ambulatory care settings to determine the feasibility, usability, and acceptability of an audio-based PHL developed with older adults and caregivers, HealthPAL. Participants in the intervention arms will receive access to an audio-based PHL with either 1) a clinic visit recording where key information is annotated and hyperlinks to trustworthy health information are provided (HealthPAL), 2) a clinic visit recording without annotations or hyperlinks, or 3) the third group of participants will receive usual care (control) with no recordings. Usability metrics and satisfaction will be assessed at two weeks. Preliminary data on the impact of HealthPAL on patient ability to seek, find and use health information with high confidence and patient activation, as well caregiver preparedness will also be gathered.
Investigators
Paul J. Barr
Associate Professor, The Dartmouth Institute for Health Policy & Clinical Practice Geisel School of Medicine at Dartmouth
Dartmouth-Hitchcock Medical Center
Eligibility Criteria
Inclusion Criteria
- •(1) ≥ 65 years
- •(2) with multimorbidity
- •(3) plan on receiving ongoing care at the clinic for the subsequent month
- •(4) access to internet.
- •The investigators will only include patients of clinicians (MDs, NPs) who (1) are based at the study clinic; (2) who treat adult patients.
Exclusion Criteria
- •(1) who have a six-item screener (SIS) of cognitive function score ≤ 4 and/or for those with a defined caregiver, whose proxy has not provided consent for the patient's participation
- •(2) with schizophrenia, or other psychotic disorders, substance-abuse disorders, and with uncorrectable vision or hearing impairment
- •(3) who reside in nursing homes, long-term care, skilled nursing, or hospice.
- •The investigators will exclude clinicians who (1) are trainees, e.g., medical students or residents; or (2) commonly audio or video record clinic visits for patient's personal use.
Outcomes
Primary Outcomes
Participant retention (Feasibility)
Time Frame: Two weeks from baseline
The proportion of included participants completing the two-week (T1) follow up assessment.
Listening rates (Acceptability)
Time Frame: Two weeks from baseline
The proportion of patients who listen to their recordings.
System Usability Scale (SUS)
Time Frame: Two weeks from baseline
10-item PROM. A score ≥68 points (0-100) indicates above average usability
Acceptability of Intervention Measure (AIM)
Time Frame: Two weeks from baseline
Four-item PROM assessing acceptability of intervention. Higher score indicates higher acceptability of the intervention.
Intervention Appropriateness Measure (IAM)
Time Frame: Two weeks from baseline
Four-item PROM assessing feasibility of intervention. Higher score indicates greater appropriateness of the intervention.
Feasibility of Intervention Measure (FIM)
Time Frame: Two weeks from baseline
Four-item PROM assessing feasibility of intervention. Higher score indicates higher feasibility of the intervention.