Effect of Addressing Quality of Life on Challenging Behaviour in Adults with Intellectual or Developmental Disability

Not Applicable

• Conditions: Challenging behaviour; Intellectual Disability; Developmental Disability; Neurological - Other neurological disorders; Mental Health - Autistic spectrum disorders; Human Genetics and Inherited Disorders - Other human genetics and inherited disorders; Human Genetics and Inherited Disorders - Down's syndrome

• Registration Number: ACTRN12623000716662
• Lead Sponsor: Sophia Kennedy

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2023-07-05
• Last Update Posted: 10 July 2023

Recruitment & Eligibility

• Status: ot yet recruiting
• Sex: All
• Target Recruitment: 10

Inclusion Criteria

Dyads consisting of one resident participant and one respective staff member

Resident participants:

(a) adults 18 years or older
(b) have a diagnosis of IDD and high levels of support need to be identified through the Supports Intensity Scale- Adult (SIS-A; Thompson et al., 2015)
(c) living in a residential care setting
(d) engaging in challenging behaviour that is negatively impacting the quality of life of the individual according to the Challenging Behaviour Interview (CBI; Oliver et al., 2003)
(e) not be currently receiving a formal behavioural intervention in addition to the organisations behaviour management plan.

Staff participants:
(a) regularly working with a resident that meets the above criteria
(b) expecting to continue working with this resident at least for the duration of the study.

Exclusion Criteria

If the resident is actively receiving a formal behavioural intervention at the time of recruitment, they will be excluded from the study as a) intervention strategies may have the potential for conflict, b) changes in residents’ behaviour will not be clearly attributable to the current study or the formal behaviour intervention, posing challenges for both parties. However, given long waitlists for behaviour intervention services in New Zealand, participants may be on the waitlist for services and will not be discouraged from seeking these services participation.

Staff members will be excluded if they are expecting to leave their role working with the resident during the study's duration. This will maximise the likelihood of the intervention having full effect.

Study & Design

• Study Type: Interventional
• Study Design: Not specified