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The Home Sweet Home study.

Completed
Conditions
Patients with Chronic Obstructive Pulmonary Disease (COPD) + their resident loved ones.
Registration Number
NL-OMON24106
Lead Sponsor
Prof. E.F.M. Wouters, MD, PhDCiro+, centre of expertise for chronic organ failure
Brief Summary

/A

Detailed Description

Not available

Recruitment & Eligibility

Status
Completed
Sex
Not specified
Target Recruitment
384
Inclusion Criteria

1. COPD as main diagnosis (GOLD stage II, III or IV according to GOLD guidelines);

2. No exacerbation or hospitalization <4 weeks before enrolment;

Exclusion Criteria

1. Unable to complete the study questionnaires because of cognitive impairment as determined by the ‘Short Blessed Test’, for both the patient as well as the loved one;

2. Unable to speak or understand Dutch, for both the patient as well as the loved one.

Study & Design

Study Type
Observational non invasive
Study Design
Not specified
Primary Outcome Measures
NameTimeMethod
The resident loved one, their perception of the person with COPD, and the person with COPD will be compared by using the:<br /><br>1. Problematic ADLs using the Canadian Occupational Performance Measure (COPM);<br /><br>2. COPD Assessment Test (CAT);<br /><br>3. mMRC dyspnea scale;<br /><br>4. Short-Form 12;<br /><br>5. Instrumental Activities of Daily Living Scale (IADLS);<br /><br>6. EQ-5D;<br /><br>7. Fatigue using the Subjective Fatigue subscale of the Checklist Individual Strength;<br /><br>8. Self-efficacy for home walking.
Secondary Outcome Measures
NameTimeMethod
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