Het ontwikkelen en testen van een online ondersteuningsprogramma voor ouders van kinderen met een chronische nierziekte
- Conditions
- Chronic kidney disease (children).
Recruitment & Eligibility
- Status
- Pending
- Sex
- Not specified
- Target Recruitment
- 120
Inclusion Criteria
The parents of children with a chronic kidney disease who receive treatment and care at the Radboud university medical center for paediatric nephrology in Nijmegen. We will include five subgroups of parents of children:
1. in the pre-dialysis stage of the chronic kidney disease,
Exclusion Criteria
Parents who are not able to speak Dutch
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method We will use five different questionnaires: <br /><br>1. Parental Stress will be assessed with the Pediatric Inventory for Parents-short form (PIP-SF; Streisand et al. 2001). <br /><br>2. The child’s quality of life will be assessed using the Dutch version of the Child Vulnerability Scale (Forsyth et al. 1996). <br /><br>3. Self-management of parents will be assessed with the Dutch version of the Family Management Measure (FAMM; Knafl et al. 2009). <br /><br>4. Self efficacy in the communication with healthcare professionals will be assessed with the Dutch version of the Perceived Efficacy in Patient- Physician Interactions (PEPPI-5; ten Klooster et al. 2011). <br /><br>5. Fatigue among parents will be assessed using the Dutch version of the Multidimensional Fatigue Inventory (MFI-20; Smets et al. 1995). <br>
- Secondary Outcome Measures
Name Time Method Process evaluation: We will evaluate the experiences of parents in the intervention group, who can use the e-support program. Dropping out of the support program will be evaluated using a questionnaire