The effect of Family-Centered Empowerment on Quality of Life of Children with hemophilia and the care burden of caregivers
Not Applicable
- Conditions
- Family-centered empowerment education on the quality of life of children with hemophilia and caring burden..Von Willebrand's disease
- Registration Number
- IRCT20181123041733N1
- Lead Sponsor
- Ahvaz University of Medical Sciences
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Complete
- Sex
- All
- Target Recruitment
- 50
Inclusion Criteria
The desire to participate in research.
Diagnosis of a child with hemophilia by a physician and having a case at hematologic clinic of Baghaee Hospital, Ahvaz, Iran
There is no other chronic disease other than hemophilia, such as diabetes, asthma, thalassemia.
Age range 12-8 years
Exclusion Criteria
Lack of record of participation in previous training programs
Study & Design
- Study Type
- interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Quality of life for children with hemophilia. Timepoint: Before the intervention and 37 days after the intervention began. Method of measurement: Hemophilia quality of life questionnaire.;Caregivers for carers of children with hemophilia. Timepoint: Before the intervention and 37 days after the intervention began. Method of measurement: Zarit's Care Bar Questionnaire.
- Secondary Outcome Measures
Name Time Method Improving the quality of life. Timepoint: 45 days. Method of measurement: Hemophilia Quality of Life Questionnaire, Zarit's Care Weight Inventory.