MedPath

ADYNOVATE Drug Use-Results Survey

Completed
Conditions
Hemophilia A
Interventions
Registration Number
NCT03169972
Lead Sponsor
Takeda
Brief Summary

The purpose of this survey is to understand the following items in the actual clinical use of ADYNOVATE in patients:

1. Unexpected adverse drug reactions

2. Occurrence of adverse drug reactions in the actual clinical use

3. Factors that may affect safety and efficacy

4. Occurrence of Factor VIII inhibitor development in patients with coagulation factor VIII deficiency (hereinafter hemophilia A)

5. Safety and efficacy for hemophilia A patients who received routine prophylactic therapy and on-demand therapy

Detailed Description

Not available

Recruitment & Eligibility

Status
COMPLETED
Sex
All
Target Recruitment
135
Inclusion Criteria
  • Hemophilia A patients who receive ADYNOVATE, including previously treated patients with Factor VIII deficiency (PTPs), and previously untreated patients with Factor VIII deficiency (PUPs) who are treated with ADYNOVATE.
Exclusion Criteria
  • Patients not administered ADYNOVATE.

Study & Design

Study Type
OBSERVATIONAL
Study Design
Not specified
Arm && Interventions
GroupInterventionDescription
Previously untreated patients (PUPs)ADYNOVATEPUPs: patients who had 3 or less previous exposure days to other products
Previously treated patients (PTPs)ADYNOVATEPTPs: patients who had 4 or more days to other Factor VIII (FVIII) products
Primary Outcome Measures
NameTimeMethod
Number of Participants Who Discontinued the Use of Study DrugThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Number of previously treated patients (PTPs) and previously untreated patients (PUPs) who discontinued the use of ADYNOVATE were reported.

Annual Bleed Rate (ABR) of Spontaneous Bleeding Episodes on a Prophylaxis RegimenThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Annual bleed rate (ABR) of spontaneous bleeding episodes in PTPs and PUPs on a prophylaxis regimen were reported. Annual bleed rate is calculated by the number of bleeding episodes observed during administration period divided by the duration of administration period, after that multiplied with 365.2425.

Annual Bleed Rate (ABR) of Breakthrough Bleeding Episodes on a Prophylaxis RegimenThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Annual bleed rate (ABR) of breakthrough bleeding episodes in PTPs and PUPs on a prophylaxis regimen were reported. Annual bleed rate is calculated by the number of bleeding episodes observed during administration period divided by the duration of administration period, after that multiplied with 365.2425.

Duration of Treatment of Study Drug on a Prophylaxis RegimenThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs.

Duration of treatment of study drug on a prophylaxis regimen was reported.

Duration of Treatment of Study Drug an On-Demand RegimenThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Duration of treatment of study drug on an on-demand regimen was reported.

Dose Per Administration of Study Drug on a Prophylaxis RegimenThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Dose per administration of study drug on a prophylaxis regimen was reported.

Dose Per Administration of Study Drug an On-Demand RegimenThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Dose per administration of study drug on an on-demand regimen was reported.

Number of Doses Per a Bleeding Episode of Study Drug an On-Demand RegimenThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Number of doses per a bleeding episode of study drug on an on-demand regimen was reported.

Hemostatic Effectiveness of Study Drug on Treatment of Breakthrough Bleeding Episodes With a Prophylaxis RegimenThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Percentage of each category of hemostatic effectiveness for treatment of breakthrough bleeding episodes in a prophylaxis regimen assessed by the investigator was reported. Hemostatic effectiveness was assessed by the investigator with following 4-point ordinal scale: Excellent, Good, Fair, Poor.

Hemostatic Effectiveness of Study Drug on an On-Demand RegimenThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Percentage of each category of hemostatic effectiveness for an on-demand regimen assessed by the investigator was reported. Hemostatic effectiveness was assessed by the investigator with following 4-point ordinal scale: Excellent, Good, Fair, Poor.

Secondary Outcome Measures
NameTimeMethod
Number of Doses Per a Week of Study Drug on a Prophylaxis RegimenThroughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Number of doses per a week of study drug on a prophylaxis regimen was reported.

Number of Participants Who Experience Factor VIII Inhibition, Dermatitis Atopic or Eczema as an Adverse Event (AE)Throughout the study participation period: 1 year for previously treated patients for PTPs and 2 years for previously untreated patients for PUPs

Number of PTPs and PUPs who experienced factor VIII inhibition, dermatitis atopic or eczema as an AE related to development of inhibitors, shock or anaphylaxis was reported.

Trial Locations

Locations (49)

Matsuyama City, Japan

🇯🇵

Matsuyama City, Ehime Prefecture, Japan

Sapporo City

🇯🇵

Sapporo City, Hokkaido, Japan

Kyoto City

🇯🇵

Kyoto City, Kyoto Prefecture, Japan

Setagaya-ku, Japan

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Setagaya-ku, Tokyo Metropolitan, Japan

Osaka-City, Japan

🇯🇵

Osaka-City, Osaka Prefecture, Japan

Morioka City, Japan

🇯🇵

Morioka City, Iwate Prefecture, Japan

Koti City, Japan

🇯🇵

Koti City, Koti Prefecture, Japan

Sendai City

🇯🇵

Sendai City, Miyagi Prefecture, Japan

Hirakata City

🇯🇵

Hirakata City, Osaka Prefecture, Japan

Nishi-ku

🇯🇵

Nishi-ku, Osaka Prefecture, Japan

Fukuoka-City, Japan

🇯🇵

Fukuoka-City, Fukuoka Prefecture, Japan

Ogaki City, Japan

🇯🇵

Ogaki City, Gifu Prefecture, Japan

Kobe City

🇯🇵

Kobe City, Hyogo Prefecture, Japan

Higashiosaka City

🇯🇵

Higashiosaka City, Osaka Prefecture, Japan

Kawasaki City, Japan

🇯🇵

Kawasaki City, Kanagawa Prefecture, Japan

Shinjuku-Ku, Japan

🇯🇵

Shinjuku-Ku, Tokyo Metropolis, Japan

Toon City

🇯🇵

Toon City, Ehime Prefecture, Japan

Nishinomiya City, Japan

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Nishinomiya City, Hyogo Prefecture, Japan

Kudou-Gun, Japan

🇯🇵

Kudou-Gun, Hokkaido, Japan

Zentuji City, Japan

🇯🇵

Zentuji City, Kagawa Prefecture, Japan

Minamata City, Japan

🇯🇵

Minamata City, Kumamoto Prefecture, Japan

Kashiwazaki City

🇯🇵

Kashiwazaki City, Niigata Prefecture, Japan

Osaka City, Japan

🇯🇵

Osaka City, Osaka Prefecture, Japan

Matsudo City, Japan

🇯🇵

Matsudo City, Chiba Prefecture, Japan

Narita City

🇯🇵

Narita City, Chiba Prefecture, Japan

Sukagawa City

🇯🇵

Sukagawa City, Fukushima Prefecture, Japan

Hirosaki City

🇯🇵

Hirosaki City, Aomori Prefecture, Japan

Koriyama City

🇯🇵

Koriyama City, Fukushima Prefecture, Japan

Nagoya City, Japan

🇯🇵

Nagoya City, Aichi Prefecture, Japan

Chiba-City, Japan

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Chiba-City, Chiba Prefecture, Japan

Tsu City, Japan

🇯🇵

Tsu City, Mie Prefecture, Japan

Matsumoto City

🇯🇵

Matsumoto City, Nagano Prefecture, Japan

Kurasiki City, Japan

🇯🇵

Kurasiki City, Okayama Prefecture, Japan

Hiroshima City, Japan

🇯🇵

Hiroshima City, Hiroshima Prefecture, Japan

Kagoshima City, Japan

🇯🇵

Kagoshima City, Kagoshima Prefecture, Japan

Maebashi City

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Maebashi City, Gunma Prefecture, Japan

Jyoetsu City

🇯🇵

Jyoetsu City, Niigata Prefecture, Japan

Kitakyusyu City, Japan

🇯🇵

Kitakyusyu City, Fukuoka Prefecture, Japan

Nagano City, Japan

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Nagano City, Nagano Prefecture, Japan

Sakata City, Japan

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Sakata City, Yamagata Prefecture, Japan

Yokohama City, Japan

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Yokohama City, Kanagawa Prefecture, Japan

Tome City, Japan

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Tome City, Miyagi Prefecture, Japan

Nichinan City

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Nichinan City, Miyazaki Prefecture, Japan

Tokushima City, Japan

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Tokushima City, Tokushima Prefecture, Japan

Suginami-ku, Japan

🇯🇵

Suginami-ku, Tokyo, Japan

Okayama City, Japan

🇯🇵

Okayama City, Okayama Prefecture, Japan

Koshigaya City, Japan

🇯🇵

Koshigaya City, Saitama Prefecture, Japan

Saitama-City, Japan

🇯🇵

Saitama-City, Saitama Prefecture, Japan

Shunan City, Japan

🇯🇵

Shunan City, Yamagata Prefecture, Japan

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