The Parkinson's Genetic Research Study
- Conditions
- Parkinson's Disease
- Registration Number
- NCT01558479
- Lead Sponsor
- University of Washington
- Brief Summary
The Parkinson's Genetic Research Study (PaGeR), headed by Dr. Cyrus Zabetian, is searching for genes that increase the risk of developing Parkinson's disease (PD) and related disorders. The study is a joint effort by neurologists and researchers across the United States and is sponsored by the National Institutes of Health. The coordinating center for PaGeR is located at the University of Washington and the VA Puget Sound Health Care System in Seattle.
- Detailed Description
PaGeR is focusing on families in which two or more people have been diagnosed with PD. Past research suggests that such "multiplex" families might hold the key to the discovery of new PD genes.
To take part in PaGeR, participants will be asked to complete a questionnaire and to undergo an interview, a neurological exam, a short memory test, and a blood draw. Enrollment in the study usually takes between one and two hours. There is no cost to participate, and all study information is kept strictly confidential.
There are a number of designated sites across the country where families can enroll. However, for family members who are unable to travel to one of these sites, other arrangements can be made.
Recruitment & Eligibility
- Status
- RECRUITING
- Sex
- All
- Target Recruitment
- 5000
- Over 18 years of age
- Member of a family in which there are two or more living individuals who have been diagnosed with Parkinson's disease
- Under 18 years of age
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method
Trial Locations
- Locations (5)
Emory University/ Wesley Woods Health Center
🇺🇸Atlanta, Georgia, United States
University of Cincinnati
🇺🇸Cincinnati, Ohio, United States
VA Puget Sound Health Care System
🇺🇸Seattle, Washington, United States
University of Washington
🇺🇸Seattle, Washington, United States
Portland VA Medical Center
🇺🇸Portland, Oregon, United States