avigating uncertainty in gender incongruence and differences in sex development (DSD)/intersex conditions
- Conditions
- genderincongruentiedifferences in sex development/intersex conditionsgender incongruence/transgender10010612
- Registration Number
- NL-OMON53833
- Lead Sponsor
- Radboud Universitair Medisch Centrum
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- Not specified
- Target Recruitment
- 105
This study consists of three substudies: 1) an interview study, 2) an
observation study on clinical consultations, and 3) an observation study on
multidisciplinary meetings (MDMs). Below, we provide the inclusion criteria
for each study.
1. Interview study:
This study concerns four groups: 1) healthcare professionals, 2)
children/adolescents with gender incongruence or a DSD/intersex condition, 3)
their parents, and 4) (young) adults with a DSD/intersex condition. Below, we
provide the inclusion criteria for the interview study for each group:
1) Healthcare professionals working at the Expertise Center Sex & Gender
(Radboudumc) or Amsterdam Expertise Center for Atypical sex and gender
development (Amsterdam UMC, VUmc & AMC)
2) Children/adolescents with gender incongruence or a DSD/intersex condition
between 8 and 18 years old who receive care at one of the two expertise centers
(mentioned above)
3) Parents of children/adolescents with gender incongruence or a DSD/intersex
condition who receive care at one of the two expertise centers (mentioned above)
4) Adults with a DSD/intersex condition between 18 and 50 years old who
received care for this earlier in their lives or still receive medical care
2. Observation study on consultations:
This study concerns largely the same groups as the interview study, except for
the group of adults with a DSD/intersex condition. Moreover, the minimum age of
8 for children participating in the interview study is not applicable for the
observation study, since children younger than 8 may also be part of the
video-recorded consultations. Below we provide the inclusion criteria for the
observation study for each group:
1) Healthcare professionals working at the Expertise Center Sex & Gender
(Radboudumc) or Amsterdam Expertise Center for Atypical sex and gender
development (Amsterdam UMC, VUmc & AMC)
2) Children/adolescents with gender incongruence or a DSD/intersex condition
between 0 and 18 years old, who receive care at one of the two expertise
centers (mentioned above)
3) Parents of children/adolescents with gender incongruence or a DSD/intersex
condition who receive care at one of the two expertise centers (mentioned above)
3. Observation study on MDMs:
This study concerns the same group of healthcare professionals as those
approached for the studies described above:
Healthcare professionals working at the Expertise Center Sex & Gender
(Radboudumc) or Amsterdam Expertise Center for Atypical sex and gender
development (Amsterdam UMC, VUmc & AMC)
-
Study & Design
- Study Type
- Observational non invasive
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method <p>Interview study: insight into the experiences and reflections of healthcare<br /><br>professionals, children/adolescents and their parents with regard to<br /><br>uncertainty in transgender and DSD/intersex care.<br /><br><br /><br>Observation study consultations: insight into the ways in which different types<br /><br>of uncertainty manifest in clinical consultations, what the interactional<br /><br>consequences of those manifestations are, and whether/how these change in the<br /><br>course of a medical trajectory.<br /><br><br /><br>Observation study MDMs: insight into the ways in which different types of<br /><br>uncertainty manifest in multidisciplinary meetings, and what the interactional<br /><br>consequences of those manifestations are.</p><br>
- Secondary Outcome Measures
Name Time Method <p>N/a.</p><br>