Amyotrophic Lateral Sclerosis Web Based Patient Care Database: ALSConnection.Org

Completed

• Conditions: Amyotrophic Lateral Sclerosis

• Registration Number: NCT00302198
• Lead Sponsor: Forbes Norris MDA/ALS Research Center

Brief Summary

The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.

Detailed Description

Any person who has been diagnosed with ALS by a physician can enroll into this registry.

The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.

Study Timeline

• Study Start: 2006-01
• Study First Submitted: 2006-03-10
• Study First Submitted QC: 2006-03-10
• Study First Posted: 2006-03-14
• Status Verified: 2010-02
• Primary Completion: 2010-02
• Study Completion: 2010-02
• Last Update Submitted: 2010-03-01
• Last Update Posted: 2010-03-02

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 15000

Inclusion Criteria

• There are no inclusion and exclusion criteria beyond the fact that a person needs to have ALS in order to enroll.

Exclusion Criteria

Not provided

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Trial Locations

Locations (1)

Forbes Norris MDA/ALS Center; 🇺🇸 San Francisco, California, United States