Amyotrophic Lateral Sclerosis Web Based Patient Care Database

Forbes Norris MDA/ALS Research Center1 site in 1 country15,000 target enrollmentJanuary 2006

ConditionsAmyotrophic Lateral Sclerosis

Overview

Phase: Not Applicable
Intervention: Not specified
Conditions: Amyotrophic Lateral Sclerosis
Sponsor: Forbes Norris MDA/ALS Research Center
Enrollment: 15000
Locations: 1
Status: Completed
Last Updated: 16 years ago

Overview Investigators Eligibility Criteria Outcomes Sites Similar Trials

Overview

Brief Summary

The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.

Detailed Description

Any person who has been diagnosed with ALS by a physician can enroll into this registry. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.

Registry

clinicaltrials.gov

Start Date

January 2006

End Date

February 2010

Last Updated

16 years ago

Study Type

Observational

Sex

All