NCT00302198已完成不适用
Amyotrophic Lateral Sclerosis Web Based Patient Care Database
Forbes Norris MDA/ALS Research Center1 个研究点 分布在 1 个国家目标入组 15,000 人开始时间: 2006年1月最近更新:
适应症
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 发起方
- 入组人数
- 15,000
- 试验地点
- 1
研究概览
简要总结
The purpose is to collect data for ALS research. The data will be used to learn more about the origin of ALS and to improve quality of care for people with ALS. The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research.
详细描述
Any person who has been diagnosed with ALS by a physician can enroll into this registry.
The information you provide in the ALS registry will be used to evaluate variations in patient care, adherence to standards of care and also to help foster ALS research. An additional focus of this website will be to educate participating patients and visitors to this site about ongoing ALS research.
研究设计
- 研究类型
- Observational
- 时间视角
- Prospective
入排标准
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •There are no inclusion and exclusion criteria beyond the fact that a person needs to have ALS in order to enroll.
排除标准
- 未提供
研究者
研究点 (1)
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