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Clinical Trials/NCT04115475
NCT04115475
Completed
Not Applicable

New Imaging Biomarkers for Muscular Diseases - Multispectral Optoacoustic Imaging in Spinal Muscular Atrophy

University of Erlangen-Nürnberg Medical School1 site in 1 country20 target enrollmentNovember 7, 2019

Overview

Phase
Not Applicable
Intervention
Not specified
Conditions
Muscular Diseases
Sponsor
University of Erlangen-Nürnberg Medical School
Enrollment
20
Locations
1
Primary Endpoint
Spectral profile of muscle tissue
Status
Completed
Last Updated
5 years ago

Overview

Brief Summary

This study aims to refine the capability of MSOT to characterise muscle tissue and to determine non-invasive, quantitative biomarkers for the disease assessment in patients with spinal muscular atrophy (SMA) using Multispectral Optoacoustic Tomography (MSOT).

Detailed Description

SMA is an autosomal-recessive disorder, characterized by progressive muscle weakness and atrophy with an incidence of 1/10,000. The condition is caused by a homozygous deletion or mutation in the survival motor neuron 1 (SMN1), resulting in reduced expression of the survival motor neuron (SMN) protein. This leads to the degeneration of motor neurons in the spinal cord and brain stem. A nearby related gene, survival motor neuron 2 (SMN2), could partially compensate the loss of SMN1. Individuals with a higher copy number of SMN2 do in general have a milder phenotype. New therapeutic approaches, e.g. nusinersen (spinraza©), an antisense oligonucleotide medication that modulates pre-messenger RNA splicing of the survival motor neuron 2 (SMN2) gene, are promising to help the formerly incurable children. However, most clinical trials lack primary outcomes other than clinical testing. At the moment there are no prospective, quantitative biomarkers available to detect muscle atrophy at an early age, and to follow up disease progression. As a new imaging modality, optoacoustic imaging (OAI) combines benefits of optical (high contrast) and acoustic (high resolution) imaging. Multispectral optoacoustic tomography (MSOT) is therefore capable of visualizing the distribution of endogenous absorbers by initiating laser-induced thermoelastic expansion and detection of resulting pressure waves. This imaging technique enables the label-free detection and quantification of different endogenous chromophores, such as melanin, hemoglobin, deoxyhemoglobin and lipids. Previously, it was demonstrated that MSOT is capable to monitor disease severity in Crohn's disease by detecting different signal levels of hemoglobin as markers of intestinal inflammatory activity. In this study we want to refine the capability of MSOT to characterize muscle tissue and to determine a non-invasive, quantitative biomarker for the disease assessment in SMA patients from birth using MSOT.

Registry
clinicaltrials.gov
Start Date
November 7, 2019
End Date
January 30, 2020
Last Updated
5 years ago
Study Type
Interventional
Study Design
Parallel
Sex
All

Investigators

Sponsor
University of Erlangen-Nürnberg Medical School
Responsible Party
Sponsor

Eligibility Criteria

Inclusion Criteria

  • genetically proven SMA

Exclusion Criteria

  • Pregnancy
  • Tattoo on skin to be examined
  • For healthy volunteers only: suspected muscular disease/myopathia

Outcomes

Primary Outcomes

Spectral profile of muscle tissue

Time Frame: Single time point (1 day)

Spectral profile of muscle tissue determined by multispectral optoacoustic tomography (MSOT) of patients with spinal muscular atrophy compared to healthy volunteers units: arbitrary units (a.u.)

Secondary Outcomes

  • Muscular collagen content(Single time point (1 day))
  • Muscular lipid content(Single time point (1 day))
  • Muscular myo-/hemoglobin content(Single time point (1 day))
  • Correlation of lipid signal with clinical data (age/disease duration)(Single time point (1 day))
  • Correlation of collagen signal with physical assessment (HINE/HFMSE/CHOP INTEND/ULM)(Single time point (1 day))
  • Correlation of myo-/hemoglobin signal with physical assessment (HINE/HFMSE/CHOP INTEND/ULM)(Single time point (1 day))
  • Correlation of RUCT and B-Mode Ultrasound(Single time point (1 day))
  • Muscular de-/oxygenated myo-/hemoglobin content(Single time point (1 day))
  • Correlation of collagen signal with clinical data (age/disease duration)(Single time point (1 day))
  • Correlation of myo-/hemoglobin signal with clinical data (age/disease duration)(Single time point (1 day))
  • Correlation of de-/oxygenated myo-/hemoglobin signal with clinical data (age/disease duration)(Single time point (1 day))
  • Correlation of lipid signal with physical assessment (HINE/HFMSE/CHOP INTEND/ULM)(Single time point (1 day))
  • Correlation of de-/oxygenated myo-/hemoglobin signal with physical assessment (HINE/HFMSE/CHOP INTEND/ULM)(Single time point (1 day))
  • Side differences of MSOT signals(Single time point (1 day))

Study Sites (1)

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