PATHWAYS in Europe

Completed

• Conditions: Employment

• Registration Number: NCT03519334
• Lead Sponsor: Maria Cabello

Brief Summary

PATHWAYS is a 3-year project that directly contributes to the 2014 Work Programme by focusing on action 2.1.1.3 regarding the development of innovative approaches to promote the professional integration and reintegration of people with chronic diseases and improve their employability. The main aim of PATHWAYS is to provide evidence-based recommendations for the effective professional integration of people with chronic health conditions in Europe

Detailed Description

Introduction: One out four people experience any long-lasting health problem in Europe. Individuals with chronic diseases often experience work-related problems, leading to negative consequences at individual and societal level. The rising prevalence of chronic diseases as well as the current economic recession made this issue even more problematic, requiring action in terms of innovative strategies to improve the participation of these persons in the labor market.

The PATHWAYS objectives are:

1. To identify integration and re-integration strategies that are available in Europe and beyond and to determine their effectiveness (systematic literature review)

2. To assess the specific employment related needs of persons with chronic diseases and mental disorders (e-survey including people with chronic health conditions)

3. To develop guidelines supporting the implementation of effective professional integration and reintegration strategies. (expert consultation survey)

Methods:

PATHWAYS is a multi-informant approach study. Information will be gathered from different sources:

1. Systematic literature review,

2. An expert consultation study (Including NGOs, patient's organizations and advocacy organizations operating at European Level). Experts will be searched by Internet. Questionnaire will be completed by e-mail

3. an e-Survey including people with chronic health conditions. The Clinical Record Form (CRF) will be online (Google forms). Participation will be free. Any people who meet the inclusion criteria can log in and complete it. The dissemination of the CRF will be done via relevant patient's associations. The CRF will be also published in the patient association's websites, if possible

Hypothesis:

* Literature will focus on the negative points of experiencing chronic health problems in the workplace rather than analysing the professional needs of people with these health conditions

* There will be a set of professional needs that will be shared across different chronic health condition groups and that can be targeted in common preventive strategies

* There will be a considerable gap between the existing employment strategies (i.e. services, systems and policies) and the real employment needs of people with chronic health conditions

Study Timeline

• Study Start: 2015-05
• Primary Completion: 2017-06
• Status Verified: 2017-11
• Study First Submitted: 2017-11-08
• Study Completion: 2017-12
• Study First Submitted QC: 2018-05-07
• Last Update Submitted: 2018-05-07
• Study First Posted: 2018-05-08
• Last Update Posted: 2018-05-08

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 686

Inclusion Criteria

• People with self-reported diagnosis of chronic health conditions (i.e Diabetes, Chronic obstructive Pulmonary Disease, Major Depression, Dysthymia, Migraine, Back & Neck Pain, Cancer, Ischemic Heart Disease)
• Participants living in European Union (EU-28)
• Working age: 18-65 years

Exclusion Criteria

• Younger than 18 years
• No residents in European Union (EU-28)

Expert consultation study:

Inclusion Criteria:

• People working in Advocacy organizations. These organizations should meet all the following criteria: i) their main activities should be addressed at (re)integrating people with chronic health conditions into the workforce ii) they should operate at European level, and iii) they should have at least 3 years of experience in the field.
• Working age: 18-65 years

Exclusion Criteria:

• Advocacy organizations not operating at European Union Level

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Employment needs	One time point assessment. Period of data collection: An average of 3 years (2016-2018)	Any environmental or personal factor that impact on the professional integration of people with chronic health conditions. This definition has been conceptualized according to the International Classification of Disability and Health's framework (World Health Organization, 2001). This outcome will be collected in the e-survey study (including people with chronic health conditions)

Trial Locations

Locations (10)

Charles University Czech Republic; 🇨🇿 Praha, Czechia

University of Thessaly; 🇬🇷 Thessaloníki, Greece

Foundation IRCCS Neurological Institute Carlo Besta; 🇮🇹 Milan, Italy

Jagiellonian University Medical College; 🇵🇱 Kraków, Poland

University Rehabilitation Institute, Republic of Slovenia; 🇸🇮 Ljubljana, Slovenia

Universidad Autonoma de Madrid; 🇪🇸 Madrid, Spain

Ludwig Maximilian University; 🇩🇪 Munich, Germany

Oslo and Akershus University College of Applied Sciences; 🇳🇴 Oslo, Norway

KABEG Gailtal-Klinik; 🇦🇹 Hermagor, Austria

Fundació Sant Joan de Déu; 🇪🇸 Sant Boi De Llobregat, Barcelona, Spain