Evaluation of a Cohort of Patients With Ehlers-Danlos Syndrome Treated With Orthopedic Surgery (SED-eval)
Completed
- Conditions
- Ehlers-Danlos Syndrome
- Interventions
- Behavioral: A joint functional score based on the affected joint
- Registration Number
- NCT05137379
- Lead Sponsor
- Ramsay Générale de Santé
- Brief Summary
The aim of this study is to assess the joint involvement (shoulder - ankle - knee - elbow - wrist) in patients with Ehlers-Danlos Syndrome and treated by surgery.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 200
Inclusion Criteria
- Patient over 18 years-old suffering from Ehlers-Danlos Syndrome and belonging to the EDS cohort of Raymond Poincaré Hospital in Garches
- Patient with joint involvement of the shoulder treated by surgery
- Patient with ankle joint damage treated by surgery
- Patient with joint damage to the knee treated by surgery
- Patient with elbow joint damage treated by surgery
- Patient with joint involvement of the wrist treated by surgery
- Patient affiliated or beneficiary of a social security scheme
- Patient who has been informed of the research and does not object to the use of his data.
Exclusion Criteria
- Patient objecting to the use of their data
Study & Design
- Study Type
- OBSERVATIONAL
- Study Design
- Not specified
- Arm && Interventions
Group Intervention Description Elher-Danlos syndrome patients treated with orthopedic surgery A joint functional score based on the affected joint -
- Primary Outcome Measures
Name Time Method Joint function score according to the affected joint 1 day A joint function score according to the affected joint in patients with Ehlers-Danlos syndrome treated by surgery,:
-Elbow and wrist (QuickDash) )
- Secondary Outcome Measures
Name Time Method
Trial Locations
- Locations (2)
Hôpital Raymond Poincaré
🇫🇷Garches, Ile De France, France
Clinique Maussins-Nollet
🇫🇷Paris, France