The 100 for Parkinson’s Project: a new form of social action – the collection and donation of data by patients and the public - to improve treatment and self-care for Parkinson’s Disease.
Not Applicable
Completed
- Conditions
- Parkinson's diseaseMental and Behavioural Disorders
- Registration Number
- ISRCTN12537885
- Lead Sponsor
- uMotif Ltd
- Brief Summary
2018 quality of life results in https://pubmed.ncbi.nlm.nih.gov/30428518/ (added 13/05/2021) 2020 non-peer-reviewed results on association between non-motor symptoms and quality of life in preprint https://doi.org/10.21203/rs.3.rs-30350/v1 (added 13/05/2021)
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- All
- Target Recruitment
- 20000
Inclusion Criteria
1. Adults aged over 18
2. English speaking and literate i.e. can read, write, and speak in English at levels of proficiency necessary to function daily at job and/or daily living
3. Have access to a smartphone and/or tablet on a daily basis
4. Parkinson's sufferers
5. Friends and families of people with Parkinson's
6. Other interested members of the public
Exclusion Criteria
Participants not fulfilling the eligibility criteria
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method