The Clinical Characteristics of Children with Generalised Joint Hypermobility and thier Relationship to Adverse Outcomes

Not Applicable

Completed

• Conditions: Joint Hypermobility Ehlers Danlos Syndrome (hypermobile type); Joint Hypermobility; Ehlers Danlos Syndrome (hypermobile type); Musculoskeletal - Other muscular and skeletal disorders; Human Genetics and Inherited Disorders - Other human genetics and inherited disorders

• Registration Number: ACTRN12610000054011
• Lead Sponsor: Childrens Hospital at Westmead

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2010-01-18
• Last Update Posted: 13 January 2020

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 150

Inclusion Criteria

Beighton Hypermobility Score of 4 or more of 9

Exclusion Criteria

severe connective tissue disease

Study & Design

• Study Type: Observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Disability<br>function - mobility from 6 minute walk test <br>participation - self reported physical activity questionnaire <br>global wellbeing - health related quality of life from Peds QL [5 years post recruitment]

Secondary Outcome Measures

Name	Time	Method
fatigue as a result of condition from fatigue module Peds QL[5 years post recruitment];pain as a result of condition from pain module Peds QL (Paediatric Quality of Life Inventory) and VAS (visual analogue scales)[5 years post recruitment]