Evaluation of Knowledge and Practices About Contraception, Sexuality and Transmission Among Adolescents With Sickle Cell Disease.
Trial Snapshot
- Phase
- Not Applicable
- Status
- Completed
- Sponsor
- Enrollment
- 99
- Locations
- 1
- Primary Endpoint
- Score value of the questionnaire on general knowledge on contraception
Study Overview
Brief Summary
Evaluation of knowledge about contraception in sickle cell adolescents.
Detailed Description
Sickle cell teenagers receive regular hospital medical care.
Adolescence is the time when the pathophysiology of the disease is re-explained and when questions around puberty (possibly delayed), sexuality and contraception are discussed.
Sickle cell disease, like any chronic disease, can have repercussion on the development and behavior of young patients.
Knowledge and understanding of young patients with sickle cell disease around these issues may be insufficient.
Study Design
- Study Type
- Observational
- Observational Model
- Cohort
- Time Perspective
- Prospective
Eligibility Criteria
- Ages
- 14 Years to 19 Years (Child, Adult)
- Sex
- All
- Accepts Healthy Volunteers
- No
Inclusion Criteria
- •Patients with sickle cell disease followed at the CHIC
- •Aged 14 to 19
- •Both sexes
Exclusion Criteria
- •Neurological disorders that can impede understanding of the questionnaire.
- •Refusal to participate.
- •Not affiliated to social security.
Outcomes
Primary Outcomes
Score value of the questionnaire on general knowledge on contraception
Time Frame: at inclusion
questionnaire on general knowledge on contraception rated by 4 questions
Secondary Outcomes
- Score value of the questionnaire onspecific knowledge about the impact of sickle cell disease on the course of sexuality(at inclusion)
- Score value of the questionnaire on the transmission of the disease knowledge(at inclusion)
- Score value of the questionnaire on specific knowledge about the impact of sickle cell disease on the course of puberty(at inclusion)
- gender of the patient with sickle cell disease(at inclusion)
- age of the patient with sickle cell disease(at inclusion)
- number of hospitalizations of the patient with sickle cell disease(at inclusion)
- Score value of the questionnaire on specific knowledge on the transmission of the disease(at inclusion)
Investigators
Adele CARLIER-GONOD
Peadiatrician
Centre Hospitalier Intercommunal Creteil