Integrated Parkinson Care Networks: Assessment of Economics and Socials Barriers to the Optimal Care Pathway for Parkinson Disease Patients
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 72
- 试验地点
- 1
- 主要终点
- Identify the economic barriers to an optimal care path
研究概览
简要总结
According to the latest public health report in France, Parkinson's disease (PD) affects around 160,000 patients.
It is therefore essential to estimate the overall consumption of medical and non-medical resources by patients with PD in order to characterize the share of medical and non-medical care reimbursed by health insurance, the share of medical and non-medical care not reimbursed. by health insurance, as well as the share of formal and informal care in order to identify potential economic barriers to an optimal care path for patients with PD. It is also necessary to have information on the socio-economic characteristics and the place of residence of the resident in order to estimate the impact of these determinants on an optimal course of care.
详细描述
According to the latest public health report in France, Parkinson's disease (PD) affects around 160,000 patients
The coordination of the care pathway for patients with Parkinson disease has been improved since the implementation on the national territory of 7 interregional coordination centers and 25 regional expert centers in 2012.
Health insurance reimburses 100% of direct medical and non-medical care as soon as patients are registered in Long-Term Condition n°16. However, we currently have little information about care that is not recognized for financial coverage by health insurance.
It is therefore essential to estimate the overall consumption of medical and non-medical resources by patients with PD in order to characterize the share of medical and non-medical care reimbursed by health insurance, the share of medical and non-medical care not reimbursed. by health insurance, as well as the share of formal and informal care in order to identify potential economic barriers to an optimal care path for patients with PD. It is also necessary to have information on the socio-economic characteristics and the place of residence of the resident in order to estimate the impact of these determinants on an optimal course of care.
研究设计
- 研究类型
- Observational
- 观察模型
- Case Only
- 时间视角
- Prospective
入排标准
- 年龄范围
- 18 Years 至 —（Adult, Older Adult）
- 性别
- All
- 接受健康志愿者
- 否
入选标准
- •Patients with Parkinson's disease of any stage of severity
- •Patients over 18 years of age
- •Patients living at home
- •Patient consultant at the expert center Parkinson's at Toulouse University Hospital
排除标准
- •Pregnant and lactating woman
- •Patient under guardianship, curatorship or safeguard of justice
- •Person who does not understand French to be able to answer the questionnaire
- •Patient who participated or participated in the iCare PD project
结局指标
主要结局
Identify the economic barriers to an optimal care path
时间窗: Day 0
It is the collection of the number of resources consumed and the remainder to be borne by the patient as well as the number of hours of informal help that will be valued using the replacement cost approach.
次要结局
- Identify and quantify the cost of the care pathway for patients with Parkinson's disease(Day 0)
- identify socio-economic determinants(Day 0)