AIM's Writing for Healing: A Workshop for Individuals Living With Paralysis
- Conditions
- Spinal Cord InjuriesMultiple SclerosisTransverse MyelitisAmyotrophic Lateral Sclerosis
- Registration Number
- NCT04721717
- Lead Sponsor
- University of Alabama at Birmingham
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 160
Inclusion Criteria:<br><br> 1. Age 18 or older with paralysis living in the community<br><br> 2. limb paralysis resulting from a traumatic event/accident or neurological disease<br> (e.g., spinal cord injury, head injury, stroke, multiple sclerosis, Transverse<br> myelitis, poliomyelitis, peripheral neuropathy, Parkinson's disease, ALS, botulism,<br> and Guillain-Barré syndrome etc) happened after childhood<br><br> 3. a non-traumatic spinal cord injury may be caused by arthritis, cancer, inflammation,<br> infections or disk degeneration of the spine<br><br> 4. caregivers of people with amyotrophic lateral sclerosis<br><br> 5. able to communicate verbally or through writing<br><br>Exclusion Criteria:<br><br> 1. known maladaptive behavioral patterns, exhibition of overt psychotic symptoms (e.g.,<br> presence of hallucinations, delusions, or thought disorders)<br><br> 2. congenital (e.g., spinal bifida, cerebral palsy)
Not provided
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method The Grief and Loss Scale;Emotional Distress - Depression;Perceived Stress Scale;Impact of Events Scale;Meaning and Purpose;Self-Efficacy for Managing Chronic Conditions - Managing Emotions;Sleep Disturbance;Sleep Impact;Ability to Participate in Social Roles and Activities;Satisfaction with Social Roles and Activities;Connor-Davidson Resilience Scale
- Secondary Outcome Measures
Name Time Method Cortisol level;Quality of Life During Serious Illness - Family Carers;Hospital Anxiety and Depression Scale (HADS);Caregiver Burden Inventory