Characteristics and Outcomes of Childhood Moyamoya in the UK

Completed

• Conditions: Moyamoya

• Registration Number: NCT02434302
• Lead Sponsor: Great Ormond Street Hospital for Children NHS Foundation Trust

Brief Summary

This is a study to ascertain the number of children with moyamoya in the UK, their presenting features, clinical course and outcomes.

Detailed Description

The study ahs 3 components:

1. Patient identification via the British Paediatric Surveillance Unit, and the 21 collaborating centres

2. Record review/patient interview to determine clinical features \& outcomes

3. Centralised review of imaging data to ascertain radiological phenotypes

Study Timeline

• Study Start: 2014-08
• Study First Submitted: 2015-04-30
• Study First Submitted QC: 2015-05-04
• Study First Posted: 2015-05-05
• Primary Completion: 2015-12
• Study Completion: 2015-12
• Status Verified: 2021-12
• Last Update Submitted: 2021-12-01
• Last Update Posted: 2021-12-02

Recruitment & Eligibility

• Status: COMPLETED
• Sex: All
• Target Recruitment: 98

Inclusion Criteria

• Radiological diagnosis of moyamoya

Exclusion Criteria

• Refuse consent

Study & Design

• Study Type: OBSERVATIONAL
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Number of children with moyamoya in UK	2 years

Secondary Outcome Measures

Name	Time	Method
clinical features & outcomes of childhood moyamoya	2 years
radioplogical features of childhood Moyamoya	2 years

Trial Locations

Locations (1)

Great Ormond Street Hospital for CHidlren NHS Foundation Trust; 🇬🇧 London, United Kingdom