Improving the Cognitive Accessibility of Self-reports for People With ID
- Conditions
- Mild Intellectual DisabilityBorderline Intellectual Functioning
- Interventions
- Diagnostic Test: Adaptive functioning self-report questionnaireDiagnostic Test: Adaptive functioning self-report questionnaire - adapted
- Registration Number
- NCT05857592
- Lead Sponsor
- Koraal
- Brief Summary
In the proposed study, the investigators aim to investigate whether the existing ABAS-3 self-report questionnaire is suitable to be completed meaningfully by individuals who are perceived as having mild intellectual disability (55\<IQ\<85) based on cognitive impairment. Based on the participants' experiences and researchers' expertise, the investigators develop a 'more inclusive' self-report version. The investigators then look at the extent to which participants indicate that they understand this version better, based on user experiences and limited psychometric research. In doing so, the investigators also compare the outcomes of the self-report and informant-report variant.
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- COMPLETED
- Sex
- All
- Target Recruitment
- 20
- Age 18 years or older
- Last known Total Intelligence Quotient (TIQ) 55 - 85
- Receiving support from a care organization for persons with ID.
- A care worker who knows the participant for at least a year and knows him well enough tot complete the informant version of the ABAS-3 is available.
• Severe physical or sensory impairment limiting ability to participate.
Study & Design
- Study Type
- INTERVENTIONAL
- Study Design
- SINGLE_GROUP
- Arm && Interventions
Group Intervention Description Experimental Adaptive functioning self-report questionnaire - adapted Persons with Mild Intellectual Disability (MID) or Borderline Intellectual Functioning (BIF) complete the ABAS-3 in assisted form on two occasions: the original version the first time and an adapted version after a few weeks. Experimental Adaptive functioning self-report questionnaire Persons with Mild Intellectual Disability (MID) or Borderline Intellectual Functioning (BIF) complete the ABAS-3 in assisted form on two occasions: the original version the first time and an adapted version after a few weeks.
- Primary Outcome Measures
Name Time Method Scoring comprehension - T1 Approximately 8 weeks after baseline (T1) Degree to which the qualitative information provided by the participant aligns with the self-reported score on the original version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) questionnaire. Outcomes are 0, scores align, -1, scores are lower than answer would suggest, +1, score is higher than answer would suggest.
Overall difficulty score - T0 At baseline (T0) Likert scale rating of the overall difficulty of items of original version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) by participants (from 1. very easy - 5. very difficult)
Comprehension of instructions - cognitive interviews T0 At baseline (T0) Level of verbal understanding of the instructions in the questionnaire - original version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition). Number of elements that were correctly identiefied (out of possible 10).
Scoring comprehension - T0 At baseline (T0) Degree to which the qualitative information provided by the participant aligns with the self-reported score on the original version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) questionnaire. Outcomes are 0, scores align, -1, scores are lower than answer would suggest, +1, score is higher than answer would suggest.
Comprehension of instructions - cognitive interviews T1 Approximately 8 weeks after baseline (T1) Level of verbal understanding of the instructions in the questionnaire - adapted version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition). Number of elements that were correctly identiefied (out of possible 10).
Text comprehension - cognitive interviews T0 At baseline (T0) Level of verbal understanding of questions in the questionnaire - qualitative analysis of answers from cognitive interviews during assessment of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition). Terms and concepts that were misinterpreted, participant utterings of confusion of statements of difficulty
Text comprehension - cognitive interviews T1 Approximately 8 weeks after baseline (T1) Level of verbal understanding of questions in the questionnaire - qualitative analysis of answers from cognitive interviews during assessment of an adapted version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition). Terms and concepts that were misinterpreted, participant utterings of confusion of statements of difficulty.
Overall difficulty score - T1 Approximately 8 weeks after baseline (T1) Likert scale rating of the overall difficulty of items of adapted version of the ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) by participants (from 1. very easy - 5. very difficult)
- Secondary Outcome Measures
Name Time Method Self-reported Adaptive Functioning - original ABAS-3 scores At baseline (T0) The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning.
Self-reported Adaptive Functioning - adapted ABAS-3 scores Approximately 8 weeks after baseline (T1) The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning.
The second time participants complete the ABAS (approximately 8 weeks after baseline, T1), an adapted version is used, with language and design adapted to the comprehension level of participants according to the outcomes at baseline (T0).Self-reported Adaptive functioning - SCAF At baseline (T0) The SCAF (Screener for Adaptive Functioning) is a screening questionnaire for adaptive functioning for individuals who may have MID or BIF. The SCAF yields a total AF score (min 0 - max 24), with higher scores indicating better adaptive functioning.
Informant-reported Adaptive Functioning - adapted ABAS-3 scores Approximately 8 weeks after baseline (T1) The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning.
For the informant-report an adapted version of the original is used; the adaptations for the self-report version are replicated for the informant version.Informant-reported Adaptive Functioning - original ABAS-3 scores At baseline (T0) The ABAS-3 (Adaptive Behaviour Assessment System - Third Edition) is an observational scale that measures adaptive behaviour. Both self-report and informant report versions are available. In the context of the current study, a 30-item abbreviated version is used. Composite scores are calculated: a total score and three domain scores (conceptual, social and practical domain). Scores range from 0-90 for the total scale and 0-30 for each domain scale. Higher scores indicate better adaptive functioning.
For the informant-report an adapted version of the original is used; the adaptations for the self-report version are replicated for the informant version.
Trial Locations
- Locations (1)
Koraal
🇳🇱Sittard, L, Netherlands