跳至主要内容
临床试验/DRKS00032090
DRKS00032090招募中不适用

Clinical characteristics, natural history, health care measures, and the frequency of genetic variants in the genes of SOD1, C9orf72, FUS and TARDBP in patients with sporadic and familial amyotrophic lateral sclerosis (ALS)

Ambulanzpartner Soziotechnologie APST GmbH0 个研究点目标入组 2,000 人开始时间: 2023年6月27日最近更新:
适应症

试验速览

阶段
不适用
状态
招募中
入组人数
2,000

研究概览

简要总结

暂无简介。

研究设计

研究类型
Observational

入排标准

年龄范围
18 Years 至 one(—)
性别
All

入选标准

  • ALS, including classical ALS, Progressive Muscle atrophy (PMA) or Primary Lateral Sclerosis (PLS)
  • Ability to understand the purpose and risks of the study and provide signed and dated informed consent and authorization to use protected health information (PHI) under national and local subject privacy regulations
  • Age of 18 years old at the time of informed consent

排除标准

  • Inability to provide patient directives about the notification of individual study results on genetic variants of SOD1, C9orf72, FUS and TARDBP
  • Inability to comply with study requirements
  • Unspecified reasons that, in the opinion of the site investigator, perceive the subject as unsuitable for enrollment

研究者

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