Design and development of hospice and respite care structure and care process
试验速览
- 阶段
- 不适用
- 状态
- 尚未招募
- 入组人数
- 50
- 试验地点
- 1
研究概览
简要总结
Aim of this study is to develop an ethically sound and effective hospice care system by optimizing clinical and operational process, improving infrastructure and incorporating innovate and patient center approaches. the initiative seek to enhance
the quality of palliative care and safeguarding the comfort, dignity and rights, and overall well-being of patients receiving end of life care.
Objective 1: To study the design of hospice and respite care structure in terms of manpower, Infrastructural requirement and to assess the administrative, financial and systemic implications.
Objective 2: To compare quality of care between hospice care and palliative care and make suggestions for improvement.
Objective 3: To integrate innovative approach for hospice care that prioritize and enhance patient comfort, dignity and overall well-being.
The process begins with a need assessment, where surveys, interviews, or focus group discussions are conducted to understand existing perceptions, knowledge gaps, and common misconceptions related to hospice care. This step is crucial in tailoring the messaging to suit the cultural, emotional, and informational needs of the target audience. the planning phase involves defining clear communication objectives, identifying target groups (such as terminally ill patients, families, healthcare providers, and the broader community), selecting appropriate channels of communication, and allocating the necessary budget and resources. The messaging is then developed around core themes such as symptom control, emotional and spiritual support, patient dignity, and caregiver well-being. , the facility ensures the training of staff and volunteers so that the delivery of information remains consistent, compassionate, and accurate. monitoring and evaluation, which involves measuring the reach and effectiveness. This is done by tracking the number of materials distributed, sessions conducted, referrals made, and through pre- and post-campaign surveys that assess changes in awareness and behavior. Feedback is also collected from caregivers and patients to continuously refine the communication strategy. The entire process is cyclical and iterative, allowing for continuous improvement and responsiveness to the evolving needs of the community, much like the PDCA (Plan-Do-Check-Act) model often used in quality improvement systems. Hospice and respite care aim to provide comfort-focused, dignity-preserving end-of-life care.CEA compares cost(capital + operational) with outcome (QALYs gained, symptom relief, reduced hospitalization, family satisfaction, caregiver burnout reduction).
研究设计
- 研究类型
- Observational
入排标准
- 年龄范围
- 5.00 Year(s) 至 65.00 Year(s)（—）
- 性别
- All
入选标准
- •a) A terminal diagnosis with life expectancy of six months or less if the disease follow normal progression.
- •Examples: Advanced cancer, end-stage organ failure (e.g., heart, lung, liver, or kidney disease), or neurodegenerative disorders (e.g., ALS, Parkinson’s, or advanced dementia).
- •b) Discontinuation of Curative Treatment Patient has chosen comfort-focused care over life-prolonging treatment c) for uncontrolled symptoms patient required specialized palliative support eg – pain , dyspnea.
排除标准
- •a) Patient actively pursuing curative or aggressive life-prolonging treatments (e.g, chemotherapy, surgery).
- •b) Non-Terminal Conditions Chronic illness without a terminal prognosis.
- •c) Acute Psychiatric or Behavioural Conditions Requires inpatient psychiatric intervention not managed in Hospice.
- •d) Need for Intensive Hospital Monitoring Patient requires ICU-level support or frequent emergency interventions.
研究者
Medha Sharma
Kasturba Medical college