Experienced Quality of Care and Life in advanced oncological patients and their relatives: a prospective observational cohort study
- Conditions
- Advanced cancer (gevorderde kanker)
- Registration Number
- NL-OMON23456
- Lead Sponsor
- Integraal Kankercentrum Nederland (IKNL)
- Brief Summary
none
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending
- Sex
- Not specified
- Target Recruitment
- 0
Inclusion Criteria
All patients with metastatic cancer are eligible for inclusion with two additional criteria:
- patients with breast cancer are eligible when metastasis are located in multiple organ systems.
Exclusion Criteria
Patients and their relatives are excluded for participation in the study if;
•the treating physician believes the patient is not able to participate in this study
Study & Design
- Study Type
- Observational non invasive
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Experienced quality of care and quality of life in patients with advanced cancer and relatives.
- Secondary Outcome Measures
Name Time Method Health care needs and consumption, shared decision making, social support, illness perception, (dyadic) coping, resilience, and body image. Perceived burden, personal self-care, pre-death grief, impact of death, openness of communication about illness and death, and evaluation of services is also measured in relatives.