the effect of telenursing-based family empowerment program on self-efficacy and treatment adherence in children with cystic fibrosis
- Conditions
- Self-efficacy, Treatment adherence, Cystic fibrosis, Telenursing.
- Registration Number
- IRCT20230717058822N1
- Lead Sponsor
- Shahid Beheshti University of Medical Sciences
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 50
The child or teenager has access to a smartphone.
The child does not suffer from mental, cognitive or any other chronic diseases.
The child should be able to speak Persian and be literate in reading and writing.
The child should live with both parents.
The home caregiver must be at least 18 years old.
The home caregiver should have at least a bachelor's degree, be fluent in the Persian language, and can answer questionnaires.
The mother is not part of the medical staff
The child's caregiver does not participate in a training course or class related to the child's illness before.
Reluctance and refusal to continue participating in the study
Inability to communicate due to reasons such as internet disconnection during at least two sessions
Failure to follow up on educational materials and lack of feedback in virtual question-and-answer sessions at least twice
Adverse complications during research for the child
Study & Design
- Study Type
- interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Self-efficacy. Timepoint: Before the intervention, immediately after and one month after the intervention. Method of measurement: Pediatric Rating of Chronic Illness Self-efficacy (PRCISE).;Treatment Adherence. Timepoint: Before the intervention, immediately after and one month after the intervention. Method of measurement: Measurement of adherence to treatment in chronic patients questionnaire.
- Secondary Outcome Measures
Name Time Method