Effects on quality of life and family caregiving experiences by the Namaste Care Family program for advanced dementia
- Conditions
- Dementia-related impairments
- Registration Number
- NL-OMON22922
- Lead Sponsor
- VU University Medical Center, EMGO+ Institute for Health and Care Research, Department of Public and Occupational Health, Amsterdam, the Netherlands
- Brief Summary
none yet
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Pending
- Sex
- Not specified
- Target Recruitment
- 192
Inclusion Criteria
Nursing home residents with dementia who cannot initiative meaningful activities themselves. They cannot participate in the activities a nursing home usually offers. People will typically have advanced dementia. Others may have moderate dementia and challenging behaviour or they are particularly responsive to touch, and therefore they are expected to benefit from the program
Exclusion Criteria
Family does not give permission for the resident to participate in the program and the research
Study & Design
- Study Type
- Interventional
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Patients’ quality of life and families’ positive caregiving experiences. These are measured with the Dutch translation of the Quality of Life in Late-Stage Dementia (QUALID) scale, the Dutch Positive Experiences Scale (PES) and the Dutch translation of the Gain in Alzheimer care Instrument (GAIN)
- Secondary Outcome Measures
Name Time Method Secondary patient outcomes are (dis)comfort, behavior, health problems, and psychotropic medications. Secondary family outcomes are caregiver burden, (pre)grief, and perceptions of caregiving role. Finally, costs assessed from a societal perspective