ISRCTN20156345
Active, not recruiting
未知
Participatory Approaches to Support Patient-centred Sickle Cell Disease Management in Africa (PACTS): Implementation Research
iverpool School of Tropical Medicine0 sites1,754 target enrollmentJanuary 31, 2024
Overview
- Phase
- 未知
- Intervention
- Not specified
- Conditions
- Not specified
- Sponsor
- iverpool School of Tropical Medicine
- Enrollment
- 1754
- Status
- Active, not recruiting
- Last Updated
- 2 years ago
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Adolescents living with sickle cell disease
- •1\. Aged 15 and older
- •2\. Parent/caregiver has provided informed consent
- •3\. Adolescent has given assent to participate
- •Carers of people living with sickle cell disease
- •1\. Aged 18 and older
- •2\. Caring for at least one person with sickle cell disease
- •Sickle cell disease healthcare providers
- •1\. Aged 18 and older
- •2\. Playing a role in supporting clinical management of patients with sickle cell disease
Exclusion Criteria
- •1\. Any participant not consenting to participate. If an adolescent does not give assent, this will be prioritised, even if the parent/guardian has given consent.
- •2\. Adolescent carers of someone living with sickle cell disease
Outcomes
Primary Outcomes
Not specified
Similar Trials
Active, not recruiting
Not Applicable
A virtual nursing intervention for self-management education and support versus usual care in adults with diabetesISRCTN30640743niversity of Applied Sciences and Arts Western Switzerland60
Not yet recruiting
Not Applicable
Implementation of patient engagement for the strategic promotion of patient safety: An evaluation of feasibility using the example of patient advisory boards of clinical institutions in GermanyDRKS00034733Institut für Patientensicherheit, Universitätsklinikum Bonn15
Recruiting
Not Applicable
Piloting and evaluation of a participatory patient file in psychiatry and somaticsF00-F99G35-G37Mental and behavioural disordersDemyelinating diseases of the central nervous systemDRKS00030188Immanuel Klinik Rüdersdorf, Universitätsklinikum der Medizinischen Hochschule Brandenburg Theodor Fontane8,000
Completed
Not Applicable
Building on Existing Tools to Improve Chronic Disease Prevention in Family Practice: The Better ProjectChronic disease prevention - specifically cancer, diabetes and cardiovascular diseasesNot ApplicableISRCTN07170460Canadian Partnership Against Cancer (Canada)1,120
Unknown
Not Applicable
Study of How Caregivers Help Patients Cope With Respiratory and Other Symptoms Caused by Lung CancerAnxiety DisorderDepressionDyspneaFatigueLung CancerNCT00979888University of Manchester80