ISRCTN20156345进行中（未招募）Unknown
Participatory Approaches to Support Patient-centred Sickle Cell Disease Management in Africa (PACTS): Implementation Research
iverpool School of Tropical Medicine0 个研究点目标入组 1,754 人开始时间: 2024年1月31日最近更新:
试验速览
- 阶段
- Unknown
- 状态
- 进行中（未招募）
- 发起方
- 入组人数
- 1,754
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
- 性别
- All
入选标准
- •Adolescents living with sickle cell disease
- •1. Aged 15 and older
- •2. Parent/caregiver has provided informed consent
- •3. Adolescent has given assent to participate
- •Carers of people living with sickle cell disease
- •1. Aged 18 and older
- •2. Caring for at least one person with sickle cell disease
- •Sickle cell disease healthcare providers
- •1. Aged 18 and older
- •2. Playing a role in supporting clinical management of patients with sickle cell disease
- •Sickle cell disease decision-makers/stakeholders
- •1. Aged 18 and older
- •2. Playing a role: in policymaking/guideline development for sickle cell disease; resource allocation for sickle cell disease; clinical training for sickle cell disease
- •3. Working with community-based or non-governmental organisations that support people living with sickle cell disease and their families
- •Standards-Based Audit and Participatory Action Cycle leads
- •1. Members of the study team facilitating PAC and SBA activities
排除标准
- •1. Any participant not consenting to participate. If an adolescent does not give assent, this will be prioritised, even if the parent/guardian has given consent.
- •2. Adolescent carers of someone living with sickle cell disease
研究者
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