Predicting Childhood Cancer Survivors' Transition Readiness & Transfer Outcomes (SURV Transfer Outcomes) (Administrative Supplement to R01CA218389)
试验速览
- 阶段
- 不适用
- 状态
- 已完成
- 入组人数
- 89
- 试验地点
- 2
- 主要终点
- Survivor Care Knowledge Scale
研究概览
简要总结
This study aims to evaluate the impact of electronic educational materials on adolescent and young adult (AYA) survivors' knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivor care.
详细描述
Despite increased risk for morbidity and mortality related to cancer treatment, over half of young adult survivors of childhood cancer do not engage in the recommended healthcare designed to detect late effects and secondary cancers. There is a scarcity of data on adherence to survivor-focused healthcare, particularly at the critical transition from pediatrics to adult care. In order to improve transition outcomes, the investigators need to create media to educate survivors about need for adherence to adult survivor healthcare.
This study aims to evaluate the impact of electronic educational materials on AYA survivors' knowledge about late effects, perceived benefits, self-efficacy, and intentions to engage in lifelong survivor care.
研究设计
- 研究类型
- Interventional
- 分配方式
- Na
- 干预模型
- Single Group
- 主要目的
- Supportive Care
- 盲法
- None
入排标准
- 年龄范围
- 18 Years 至 25 Years（Adult）
- 性别
- All
- 接受健康志愿者
- 是
入选标准
- •Patients must be 18-25 years of age,
- •Diagnosed with cancer at ≤ 18 years of age,
- •≥ 2 years since the last cancer treatment,
- •seen at least once in the Aflac Cancer Survivor Program (CSP) in the past 2 years or transitioned out of the Aflac CSP to adult survivor care since 2013.
排除标准
- •Patients will be excluded from participation in the study if the participant is non-English speaking.
- •Young adult survivors who are cognitively impaired and unable to complete the questionnaires.
- •Participants that do not consent to the recording of their interviews.
结局指标
主要结局
Survivor Care Knowledge Scale
时间窗: Baseline, 2 weeks post-intervention
Knowledge was assessed at baseline and 2 weeks post-intervention, with the Survivor Care Knowledge scale, that includes 15-item multiple-choice quiz to assess participants' knowledge of the content covered in the electronic educational materials previously provided. Total score ranges from 0-15. Higher score is associated with better outcome.
次要结局
- Barriers for Survivor Care(Baseline, 2 weeks post-intervention)
- Benefits for Survivor Care(Baseline, 2 weeks post-intervention)
- Perceived Susceptibility for Late Effects(Baseline, 2 weeks post-intervention)
- Intentions for Survivor Care(Baseline, 2 weeks post-intervention)
- Change in Perceived Health Competence Scale (PHCS)(Baseline, 2 weeks post-intervention)
研究者
Jordan Marchak
Associate Professor
Emory University