Extension and Evaluation of a Guidebook Application for Duchenne Muscular Dystrophy to empower affected Families
Recruiting
- Conditions
- G71.0Muscular dystrophy
- Registration Number
- DRKS00005276
- Lead Sponsor
- niversitätsklinikum Freiburg
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Recruiting
- Sex
- All
- Target Recruitment
- 110
Inclusion Criteria
Parents of patients with Duchenne Muscular Dystrophy from the German-Austrian patient registry (https://www.treat-nmd.de/register/)
Patients with Duchenne Muscular Dystrophy from the German-Austrian registry
Access to an internet-enabled device (PC, laptop, tablet, smartphone, etc.) to fill in the online questionnaires
For the second and third survey: a Android smartphone
Exclusion Criteria
Respondent is not able to understand the German language sufficiently
Limitations of vision, so that no questionnaire can be read
Study & Design
- Study Type
- observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method Pre-test post-test difference of the self-efficacy of patients and their relatives after intervention with the mobile guidebook application (questionnaire survey)
- Secondary Outcome Measures
Name Time Method se of utility services (such as physician inquiries about topics from the guidebook or the regularity of examinations)<br>Number of installations and usability (e.g. usage of the advanced features, appointments using the app)