NL-OMON53703
Recruiting
N/A
Cognitive Functioning And Health Related Quality Of Life In Retinoblastoma Survivors: The Role Of Cancer Treatment And Repeated Anesthesia - RbNeuroQoL study
Amsterdam UMC0 sites660 target enrollmentTBD
Overview
- Phase
- N/A
- Intervention
- Not specified
- Conditions
- Not specified
- Sponsor
- Amsterdam UMC
- Enrollment
- 660
- Status
- Recruiting
- Last Updated
- 2 years ago
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Cognitive functioning, psychosocial functioning and HRQoL in Rb survivors and
- •former Rb risk carriers (neuropsychological assessment and questionnaires):
- •In order to be eligible for inclusion the potential participant must meet all
- •inclusion criteria:
- •1\. Rb diagnosis, (main)treatment and follow\-up of Rb patients and \-survivors,
- •or Rb screening took place at the Dutch Retinoblastoma Expertise Center of the
- •Amsterdam University Medical Centers,
- •2\. Rb survivor or former Rb risk carriers is between 8 and 35 years old,
- •3\. Average understanding of the Dutch language.
- •Psychosocial wellbeing of the caregiver and pediatric trauma (only
Exclusion Criteria
- •A potential participant who meets any of the following criteria will be
- •excluded from participation in this study:
- •1\. Pre\-existing documented developmental delay and/or severe cognitive
- •impairments (IQ \<70\),
- •2\. Having an active, uncontrolled psychiatric illness,
- •3\. Rb diagnostic trajectory, treatment and follow\-up at another hospital or
- •before the founding of the Dutch Retinoblastoom Expertise Center in 1991\. With
- •exception of Rb survivors (diagnosed \>1991\) who apart from treatment at the
- •Dutch Retinoblastoma Center also required specialized treatment (such as
- •radiation) at another center: they are illegible for inclusion.
Outcomes
Primary Outcomes
Not specified
Similar Trials
Completed
N/A
Cognitive functioning and health-related quality of life in long-term anaplastic oligondendroglioma and oligoastrocytoma survivors from the EORTC 26951 study: second follow-upoligondendroglioma/oligoastrocytomaprimary brain tumor10029211NL-OMON55406Haaglanden Medisch Centrum12
Withdrawn
N/A
Cognitive Function and Health-related Quality of Life After Neuro-intensive CareAcute Brain InjuryCognitive DysfunctionDeliriumSepsisPost-traumatic AmnesiaHealth-related Quality of LifeNCT04881097Rigshospitalet, Denmark
Completed
N/A
eurocognitive and health-related quality of life outcomes of nocturnal oxygen supply in chronic obstructive pulmonary disease patients with sleep-related oxygen desaturatioISRCTN95689523Institute of Health Assistance (Institut d'Assistència Sanitària [IAS]) (Spain)216
Completed
N/A
Quality of life, cognitive function, and physical fitness of patients surviving more than 2 years after immune checkpoint inhibitor therapyNL-OMON48886niversitair Medisch Centrum Groningen195
Recruiting
N/A
Quality of Life and cognitive functioning in recently diagnosed TIA patientssmall stroke and transient ischaemic attack (TIA)10007963NL-OMON37095Onze Lieve Vrouwe Gasthuis100