A study to understand the financial burden that Duchenne Muscular Dystrophy as a disease imposes
Not Applicable
Completed
- Conditions
- Health Condition 1: G710- Muscular dystrophy
- Registration Number
- CTRI/2023/01/049168
- Lead Sponsor
- Dr Mamta Muranjan
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- Completed
- Sex
- Not specified
- Target Recruitment
- 60
Inclusion Criteria
Clinically diagnosed DMD, with or without genetic confirmation.
Exclusion Criteria
Patients not willing to give consent for participation.
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method To study the economic burden of Duchenne Muscular Dystrophy (DMD) in terms of cost to the family and the health care system from a societal perspective. <br/ ><br> <br/ ><br>To estimate the national burden of DMD using country specific prevalence rates <br/ ><br>Timepoint: Baseline
- Secondary Outcome Measures
Name Time Method We also aim to determine factors impacting economic burden of DMD in terms of age of onset, duration and stage of disease, socioeconomic status of family and other variables. <br/ ><br>Timepoint: Baseline