CTRI/2024/06/069585
Not yet recruiting
未知
An Observational Study of Quality of Life in Parents of Patients with Duchenne Muscular Dystrophy in India. - QOL DMD
Seth GS medical college and hospital0 sites0 target enrollmentTBD
Overview
- Phase
- 未知
- Intervention
- Not specified
- Conditions
- Not specified
- Sponsor
- Seth GS medical college and hospital
- Status
- Not yet recruiting
- Last Updated
- last year
Overview
Brief Summary
No summary available.
Investigators
Eligibility Criteria
Inclusion Criteria
- •Parents of children with DMD fulfilling the following criteria will be recruited for the study:
- •2\.Alive at time of study OR expired in a three\-month period preceding enrolment in the study
- •3\.Age: up to 18 years
- •4\.Diagnosis of DMD confirmed by genetic testing.
- •5\.Willing to consent for study
- •6\.Symptomatic brothers of patients who have expired with diagnosis of DMD.
Exclusion Criteria
- •1\. Parent not willing to give consent for the study.
- •2\. Parent with a chronic disease/ physical impairment or those caring for another family
- •member with a chronic disease/ physical impairment.
- •3\. Parent with a psychiatric illness or addictions (e.g., alcoholism, recreational drug use
- •with exception of tobacco or gutka consumption and smoking tobacco and not fulfilling
- •definition as addiction).
Outcomes
Primary Outcomes
Not specified
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