CTRI/2024/06/069585尚未招募Unknown
An Observational Study of Quality of Life in Parents of Patients with Duchenne Muscular Dystrophy in India. - QOL DMD
Seth GS medical college and hospital0 个研究点目标入组 0 人开始时间: 待定最近更新:
试验速览
- 阶段
- Unknown
- 状态
- 尚未招募
- 发起方
研究概览
简要总结
暂无简介。
研究设计
- 研究类型
- Observational
入排标准
入选标准
- •Parents of children with DMD fulfilling the following criteria will be recruited for the study:
- •2.Alive at time of study OR expired in a three-month period preceding enrolment in the study
- •3.Age: up to 18 years
- •4.Diagnosis of DMD confirmed by genetic testing.
- •5.Willing to consent for study
- •6.Symptomatic brothers of patients who have expired with diagnosis of DMD.
排除标准
- •1. Parent not willing to give consent for the study.
- •2. Parent with a chronic disease/ physical impairment or those caring for another family
- •member with a chronic disease/ physical impairment.
- •3. Parent with a psychiatric illness or addictions (e.g., alcoholism, recreational drug use
- •with exception of tobacco or gutka consumption and smoking tobacco and not fulfilling
- •definition as addiction).
研究者
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