Parents quality of life in Duchenne Muscular Dystrophy
- Conditions
- Health Condition 1: M628- Other specified disorders of muscle
- Registration Number
- CTRI/2024/06/069585
- Lead Sponsor
- Seth GS medical college and hospital
- Brief Summary
Not available
- Detailed Description
Not available
Recruitment & Eligibility
- Status
- ot Yet Recruiting
- Sex
- Not specified
- Target Recruitment
- 0
Parents of children with DMD fulfilling the following criteria will be recruited for the study:
1.Male
2.Alive at time of study OR expired in a three-month period preceding enrolment in the study
3.Age: up to 18 years
4.Diagnosis of DMD confirmed by genetic testing.
5.Willing to consent for study
6.Symptomatic brothers of patients who have expired with diagnosis of DMD.
1. Parent not willing to give consent for the study.
2. Parent with a chronic disease/ physical impairment or those caring for another family
member with a chronic disease/ physical impairment.
3. Parent with a psychiatric illness or addictions (e.g., alcoholism, recreational drug use
with exception of tobacco or gutka consumption and smoking tobacco and not fulfilling
definition as addiction).
Study & Design
- Study Type
- Observational
- Study Design
- Not specified
- Primary Outcome Measures
Name Time Method
- Secondary Outcome Measures
Name Time Method