Patient Journeys of children with chronic conditions: cross-indication analysis and recommendations for integrated care

Recruiting

• Conditions: Children and Adolescents with chronic somatic and chronic mental illnesses

• Registration Number: DRKS00032139
• Lead Sponsor: Heinrich Heine Universität Düsseldorf, Universitätsklinikum Düsseldorf, Klinik für allgemeine Pädiatrie, Neonatologie und Kinderkardiologie

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Study Start: 2023-11-07
• Last Update Posted: 19 August 2024

Recruitment & Eligibility

• Status: Recruiting
• Sex: All
• Target Recruitment: 50

Inclusion Criteria

Child, legal guardian of a child or professional involved in the care of children with at least one of the following diagnoses
–Behavioural and emotional disorders with onset usually occurring in childhood and adolescence (ICD-10: F90-94, e. g. ADHD)
–bronchial asthma (ICD-10: J45)
–diabetes mellitus type 1 (ICD-10 E11)
–developmental disorders (ICD-10: F80-84, e.g. autism)
–cerebral palsy (ICD-10: G80)

Exclusion Criteria

Child: Lack of language skills or other problems (e.g. with concentration) to conduct an interview of approx. 20 min. in German language, none of the above mentioned diagnoses

Legal guardian: no custody for the child in question, lack of language skills or other problems (e.g. with concentration) to conduct an interview of approx. 45 min in German language

Professionals: No regular professional activity with the above mentioned groups of children, lack of language skills or other problems (e.g. with concentration) to conduct an interview of approx. 45 min in German language, employee of University Hospital Düsseldorf

Study & Design

• Study Type: observational
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Recommendations from an interdisciplinary perspective for more needs-based care for children with chronic diseases

Secondary Outcome Measures

Name	Time	Method
Better alignment of care for children with chronic diseases with the needs of the families affected. Strengthen the quality of care and social participation of children with chronic diseases in the long term.