ParkinsonSupport: from A to Better

Recruiting

Conditions: Parkinsonism
Parkinson's Disease
10029305

Registration Number: NL-OMON45874

Lead Sponsor: Radboud Universitair Medisch Centrum

Brief Summary: Not available

Detailed Description: Not available

Recruitment & Eligibility

Status: Recruiting

Sex: Not specified

Target Recruitment: 98

Inclusion Criteria

Patients with a diagnosis of idiopathic Parkinson's disease:
- that have sufficient skills to answer questions or write information
- that were 18 years of older at the time of diagnosis;
- at advanced stage of PD: Hoehn &Yahr stadium III-V or a score on *Schwab en England 60% or less

Exclusion Criteria

1. Patients with a type of atypical parkinsonism caused by medication (e.g. neuroleptics), a metabolic disorder (e.g. Wilson*s disease), encephalitis or a neurodegenerative disorder (e.g. MSA, PSP).
2. Patients with idiopathic PD that live in a nursing home or another type of residential care facility (because the PDNS is not operational there).

Study & Design

Study Type: Interventional

Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
<p>The primary outcome is whether or not ACP decisions are documented in the<br /><br>medical file. Secondary outcomes include quality of life, caregiver burden,<br /><br>service use, treatment satisfaction and general functioning among patients. </p><br>

Secondary Outcome Measures

Name	Time	Method
<p>Quality of life<br /><br>Quality of care<br /><br>Disease symptoms<br /><br>Anxiety and depression<br /><br>place of death<br /><br>crisis situation</p><br>