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Study of ANAVEX2-73 in Patients With Rett Syndrome

Phase 2
Completed
Conditions
Rett Syndrome
Interventions
Drug: Placebo
Drug: ANAVEX2-73
Registration Number
NCT03758924
Lead Sponsor
Anavex Life Sciences Corp.
Brief Summary

Phase 2 safety, tolerability and efficacy study is designed as a double-blind, randomized, placebo-controlled study.

7-week placebo-controlled study of ANAVEX2-73 oral solution for the treatment of patients with RTT 18 years or older. A voluntary option will be offered for all patients who meet the exposure criteria for ANAVEX2-73 to continue a 12-week open label extension.

Detailed Description

This Phase 2 safety, tolerability and efficacy study is designed as a double-blind, randomized, placebo-controlled study.

This is a 7-week placebo-controlled study of ANAVEX2-73 oral solution for the treatment of patients with RTT 18 years or older. A voluntary option will be offered for all patients who meet the exposure criteria for ANAVEX2-73 to continue a 12-week open label extension.

Recruitment & Eligibility

Status
COMPLETED
Sex
Female
Target Recruitment
31
Inclusion Criteria
  • Aged ≥ 18 years, inclusive.
  • Diagnosis of classic RTT, according to 2010 criteria (Neul et al., 2010), and a MECP2 mutation.
  • Current pharmacological treatment regimen, including supplements, has been stable for at least 4 weeks.
  • If on antiepileptic drugs (AEDs), 1-4 AEDs allowed. Treatment must be stable (drug, dose, interval of administration) for 30 days prior to enrollment.
  • Ability to keep accurate seizure diaries or have caregiver who can keep accurate seizure diaries.
  • Confirmation from the participant that, if of childbearing potential is not pregnant through urine pregnancy testing. Female patients of childbearing potential and at risk for pregnancy must agree to abstinence.
  • Prior to the conduct of study-specific procedures, the subject's parent/caregiver/LAR must provide written informed consent. If applicable, the research team must attempt to obtain consent from both parents.
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Exclusion Criteria
  • Patients who have a progressive medical or neurological condition that in the opinion of the Investigator would interfere with the conduct of the study.
  • Current clinically significant systemic illness that is likely to result in deterioration of the patient's condition or affect the patient's safety during the study.
  • History of clinically evident stroke or clinically significant carotid or vertebrobasilar stenosis or plaque or other history of neurologic (e.g., head trauma with loss of consciousness) or psychiatric condition that the Investigator deems may interfere with interpretability of data.
  • Indication of liver disease, defined by serum levels of ALT (SGPT), AST (SGOT), or alkaline phosphatase above 3x upper limit of normal (ULN) as determined during screening.
  • Treatment with immunosuppressive medications (e.g., systemic corticosteroids) within the last 90 days (topical and nasal corticosteroids and inhaled corticosteroids for asthma are permitted) or chemotherapeutic agents for malignancy within the last 3 years.
  • Other clinically significant abnormality on physical, neurological, laboratory, or electrocardiogram (ECG) examination (e.g., atrial fibrillation) that could compromise the study or be detrimental to the participant.
  • Any known hypersensitivity to any of the excipients contained in the study drug or placebo formulation.
  • Other co-morbid or chronic illness beyond that known to be associated with RTT.
  • Subjects who plan to initiate or change pharmacologic or nonpharmacologic intervention during the course of the study.
  • Subjects on potent CYP 3A4 and CYP2C19 inhibitors and inducers.
  • Subjects taking another investigational drug currently or within the last 30 days.
  • Any other criteria (such as a clinically significant screening blood test result), which in the opinion of the Investigator could interfere with the study conduct or outcome.
  • Patients with hepatic and renal impairment.
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Study & Design

Study Type
INTERVENTIONAL
Study Design
PARALLEL
Arm && Interventions
GroupInterventionDescription
Placebo armPlaceboWeek 0-7: Take 1 ml orally of the product daily (placebo)
Active armANAVEX2-73Week 0-7: Take 1 ml orally of the product daily (solution of ANAVEX2-73)
Primary Outcome Measures
NameTimeMethod
Incidence of Adverse Events7 weeks

Incidence of Adverse Events

Maximum Plasma Concentration [Cmax] of ANAVEX2-737 weeks

PK of ANAVEX2-73 and metabolite

Area Under the Curve [AUC] of ANAVEX2-737 weeks

PK of ANAVEX2-73 and metabolite

Lipid panel7 weeks

Significant laboratory findings

Secondary Outcome Measures
NameTimeMethod
RSBQ7 weeks

Change from baseline to End of Treatment (EOT) in the Rett Syndrome Behaviour Questionnaire (RSBQ). Total score and a pre-specified subset of the RSBQ

CGI-I7 weeks

Change from baseline to End of Treatment (EOT) in the Clinical Global Impression Improvement Scale (CGI-I) score. Total score and a pre-specified subset of the CGI-I

Trial Locations

Locations (8)

UAB | The University of Alabama at Birmingham

🇺🇸

Birmingham, Alabama, United States

Boston Children's Hospital

🇺🇸

Boston, Massachusetts, United States

Cincinnati Children's Hospital Medical Center

🇺🇸

Cincinnati, Ohio, United States

Greenwood Genetic Center

🇺🇸

Greenwood, South Carolina, United States

Baylor College of Medicine

🇺🇸

Houston, Texas, United States

Rush University Medical Center

🇺🇸

Chicago, Illinois, United States

UC Davis University of California - Davis MIND Institute

🇺🇸

Sacramento, California, United States

Washington University in St. Louis | Saint Louis Children's Hospital

🇺🇸

Saint Louis, Missouri, United States

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