Improving Dementia end of life care at local aged care facilities.

Not Applicable

Completed

• Conditions: Advanced dementia; Neurological - Dementias

• Registration Number: ACTRN12612001164886
• Lead Sponsor: HammondCare

Brief Summary

Not available

Detailed Description

Not available

Study Timeline

• Results First Posted: 1900-01-01
• Study Start: 2012-11-02
• Last Update Posted: 13 January 2020

Recruitment & Eligibility

• Status: Completed
• Sex: All
• Target Recruitment: 240

Inclusion Criteria

Eligibility criteria for clusters/RACF:
- >100 high care beds
- >50% residents with dementia.

Eligibility criteria for residents:
- a diagnosis of dementia & advanced disease as determined by Functional Assessment Staging Tool (FAST) in dementia greater than or equal to 6a,
- stable for 1 month according to RACF staff;
- Australia–modified Karnofsky Performance Status (AKPS) of less than or equal to 50;
- availability of a person legally responsible to give informed consent on their behalf;
- informed consent from a family member or other who knows the resident well.

Eligibility for family/friend informant” (ideally the person legally responsible):
- visits the resident at least once a fortnight;
- knew the resident prior to their dementia diagnosis;
- is willing to be involved in decisions about the resident’s care;
- English proficiency sufficient to complete outcome measures

RAC staff:
all permanent nursing/personal care staff at participating RACFs.

Other health professionals (e.g. GPs):
all health professionals involved in case conferencing for participating residents will also be eligible to participate.

Exclusion Criteria

None.

Study & Design

• Study Type: Interventional
• Study Design: Not specified

Primary Outcome Measures

Name	Time	Method
Family-rated end of life (EOL) outcomes will be measured using the End of Life in Dementia (EOLD) Scales. <br><br>The EOLD Scales will be used to measure symptom-related comfort during the last seven days of life (CAD-EOLD), symptom management in the last 90 days of life (SM-EOLD) and family satisfaction with care during the last 90 days of life (SWC-EOLD).[The primary outcome will be measured 4 weeks following resident deaths.]